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Rare Disease Legislative Advocates’ January Webinar
January 28, 2021 @ 12:00 pm - 1:00 pm
The Rare Disease Legislative Advocates’ Monthly Webinar
January 28, 2021
This months’ webinar from the RDLA will focus on the policy priorities of the Everylife Foundation for year 2021, as well as the policy priorities for the Personalized Medicine Coalition.
Specific goals to be discussed in this webinar include Cures 2.0, the Medical Nutrition Equity Act, and newborn screening/diagnostics.