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Rare Disease Legislative Advocates’ Legislative Conference

February 25 @ 8:00 am - 4:45 pm

Rare Disease Legislative Advocates’ Legislative Conference

Part of

Rare Disease Week on Capitol Hill 2019

All of the events for Rare Disease Week are free to patients, advocates, and caregivers.

This conference is ideal for rare disease patients, their families, caregivers, and other advocates who want to learn the latest about legislative initiatives that are relevant to the needs and concerns of the rare disease patient community.

Click here to register for this event.

Details

Date:
February 25
Time:
8:00 am - 4:45 pm
Event Category:
Event Tags:
, ,
Website:
https://bit.ly/2WB2580

Organizer

Rare Disease Legislative Advocates
Phone:
202-697-7273
Email:
jjenkins@everylifefoundation.org
Website:
https://rareadvocates.org

Venue

Ronald Reagan Building and International Trade Center
1300 Pennsylvania Avenue NW
Washington, DC 20004 United States
+ Google Map
Phone:
202-759-0074
Website:
itcdc.com
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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