CHMP Backs Novo Nordisk’s Semaglutide for MASH, Opening Door to EU Approval
- February 15, 2026
Rock Bottom in Mexico: The Thyroid Eye Disease Flare That Forced Me to Rebuild My Health
Aucta Pharmaceuticals Launches PYQUVI, Expands Branded‑Generic Portfolio in Rare Disease Care
CureDuchenne’s 2026 Schedule
LISTEN TO OUR PODCAST
THE LATEST FROM PATIENT WORTHY
FEATURED
UPCOMING EVENTS
SIGN UP FOR OUR NEWSLETTER
Meet Aaron, who was diagnosed with Biliary Atresia. During Rare Disease Month, Patient Worthy is grateful to share his story and shine a light on Biliary Atresia and give hope to others living with a rare disease.
“My journey began in 1983, just 115 days after I was born, when I was diagnosed with Biliary Atresia, a rare liver disorder. Doctors performed the Kasai procedure, a life-saving surgery that was far riskier then than it is today. Their predictions for my life were grim: stunted growth, learning difficulties, a weakened body. I co-chair fundraising walks for the Liver Health Foundation, which honored me with their 2025 Courage Award. I speak on podcasts and at hospitals like Children’s Hospital Los Angeles, sharing my story to spread a message of hope. My story is my proof. My scars are my story. If you need inspiration, I hope we can be that for each other.”
To read more about Aarons journey click the link bit.ly/46KjMrm
How to Connect with Aaron:
• Instagram: @akdslife
• YouTube: @akdslife
• Website: www.akds.life
• Email: [email protected]
#RareDiseaseMonth #RareDisease #RareButNotAlone #WeCareAboutRare #ShareYourStripes #ShareYourStory #PatientWorthy #BiliaryAtresia
Love looks like slowing down, checking in with yourself, and choosing your well-being. Taking care of your health is an act of self-love -- and you deserve that care, today and everyday. Happy Valentine's Day from your friends at Patient Worthy #worththecare #yourhealthmatters #PatientWorthy 💌 💘
It's National Cardiac Rehab Week ❣️ - a time to recognize the life-changing impact of cardiac rehabilitation. It's designed to help individuals recover after heart attacks, heart surgery, or other cardiac conditions through exercise, education, and lifestyle support. 💪 The goal? Stronger hearts, healthier habits, and improved quality of life. Click the link below to share your journey with us - bit.ly/3VuxFDV #hearthealth #HeartMonth #PatientWorthy
