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Today is International CHAMP1 Awareness Day 💙
CHAMP1-related neurodevelopmental disorder is rare, but the individuals and families impacted by it are strong, resilient, and deserving of understanding, support, and visibility.
Today we raise awareness, share knowledge, and stand with families worldwide as we work toward earlier diagnoses, better resources, and continued research.
💙 Every voice matters
💙 Awareness leads to understanding
💙 Together, we are stronger
#CHAMP1AwarenessDay #RareDiseaseAwareness #CHAMP1 #PatientWorthy
We are glad you were there ! Thank you International Rett Syndrome Foundation
