Blood-Based circRNA Marker Shows Promise for Predicting Antidepressant Response
- March 7, 2026
Aardvark Pauses Late‑Stage Prader–Willi Trial After Cardiac Signals Emerge
Myth or Truth? Avoid Soy If You Have a Hormone-Positive Cancer
Breaking New Ground: FDA Green-Lights Novel Breast Cancer Treatment Targeting Treatment-Resistant Tumors
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We had the pleasure of meeting Krista in person last week at Rare Disease Week on Capitol Hill! Krista is one of ten 2025 Rare Artist Awardee winners. She is a talented wood-burning artist, advocate, wife, and mom of two. Krista was diagnosed with Usher syndrome, a rare genetic condition that affects her hearing and vision. Her vision loss, caused by retinitis pigmentosa, has narrowed her visual field from the typical 180° to just 5° of central vision. She wears hearing aids and uses a white cane daily to navigate independently!
“My art shares what it looks like to navigate life with dual sensory loss while still choosing creativity, connection, and joy. When I reflect on Rare Disease Month, it means visibility and research. It means community and advocacy. It means being seen, heard, and feeling worthy. I will continue to "wear my stripes" proudly!”
#RareDC2026 #RareDiseaseWeek #PatientWorthy #RareArtist
Getting a diagnosis for Huntington’s disease is rarely simple. It often involves a combination of neurological exams, medical history, genetic testing, and imaging to help doctors understand what’s happening in the brain.
For many families, the process can bring a mix of answers, uncertainty, and difficult decisions—especially when genetic testing is involved. Learning about diagnosis and testing is an important step toward understanding the condition, accessing care, and supporting those affected.
Awareness helps ensure people recognize the signs, seek appropriate evaluation, and receive the support they deserve. If you're interested in sharing your story, click here: bit.ly/4dV7gru
#HuntingtonsDisease #HuntingtonsDiseaseAwareness #ShareYourStory #PatientWorthy
March is Brain Injury Awareness Month. Today and every day, we stand with survivors, caregivers, and the countless individuals navigating life after a brain injury. You are seen, supported, and never alone 💚 #braininjury #BrainInjuryAwarenessMonth #MoreThanMyBrainInjury #BrainHealth
