LISTEN TO OUR PODCAST

THE LATEST FROM PATIENT WORTHY

FEATURED

UPCOMING EVENTS

SIGN UP FOR OUR NEWSLETTER

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

Who is at Risk of Getting the Deadly Nipah Virus? bit.ly/3ZPxkyh Read now at PatientWorthy.com
#PatientWorthy #NipahVirus
... See MoreSee Less

Who is at Risk of Getting the Deadly Nipah Virus? https://bit.ly/3ZPxkyh Read now at PatientWorthy.com
#PatientWorthy #NipahVirus
10 hours ago

Meet Tasheena! Her son, Asher, is living with severe pulmonary arterial hypertension (PAH), stemming from Adams-Oliver Syndrome (AOS). She shares the joys and struggles of being a caregiver, as well as the resilience and perseverance of patients diagnosed with rare diseases. In honor of Rare Disease Month, Tasheena shares her family's story to raise awareness and to encourage others to educate themselves about rare disease. To lift up other patients and families, and to see them for the amazing survivors they are!

#PulmonaryArterialHypertension #pah #Adams-OliverSyndrome #AOS #rarediseasemonth #raredisease #rarebutnotalone #WeCareAboutRare #SHAREYOURSTRIPES #shareyourstory #PatientWorthy
... See MoreSee Less

12 hours ago

FDA Grants Priority Review to Takeda's Oveporexton: A Potential Game-Changer for Narcolepsy Type 1 Treatment bit.ly/46EY206 Read now at PatientWorthy.com
#narcolepsy #NarcolepsyType1 #NT1 #PatientWorthy
... See MoreSee Less

FDA Grants Priority Review to Takedas Oveporexton: A Potential Game-Changer for Narcolepsy Type 1 Treatment https://bit.ly/46EY206 Read now at PatientWorthy.com
#Narcolepsy #NarcolepsyType1 #NT1 #PatientWorthy
Load more