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Today is Alagille Awareness Day, a time to shed light on this rare genetic condition while supporting the individuals and families living with this complex condition.
The multi-colored awareness ribbon reflects the many ways Alagille Syndrome can affect the body:
💛 Yellow- liver & digestive systems
❤️ Red- heart & circulatory
💚 Green- kidneys
💙 Blue- lungs
💜 Purple- brain and vascular
🩶 Cream- skeletal
All together, the colors symbolize unity, diversity of symptoms, and hope in the ALGS community!
Share your ALGS story with us here: bit.ly/4dV7gru
And visit Alagille Syndrome Alliance for more info!
#ALGSAwarenessDay #AlagilleSyndrome #PatientWorthy
💜January 24th is Moebius Syndrome Awareness Day💜 Moebius Syndrome affects facial movement and expression, but it doesn't define personality, intelligence, or joy! Help spread awareness by wearing purple and educating others on this rare condition.
Want to share your Moebius Syndrome story? Click here: bit.ly/4dV7gru
#MoebiusAwarenessDay #differentnotless #PatientWorthy
💛 To our brave patients stepping into a new treatment journey — we see you, and we’re cheering you on!
Starting something new can stir up hope, nerves, and everything in between, and all of it is valid. What matters most is the courage it takes to move forward, even when the path feels uncertain.
We’re here supporting you, every step of the way. 🌿💛
#PatientWorthy #YouGotThis #TreatmentJourney
