Patient Worthy

11 hours ago

In the rare disease community, no two experiences ever look exactly the same—even when the diagnosis is shared. Some face severe symptoms early, others experience milder or different challenges over time. Recognizing this range helps create space for empathy, better care, and the understanding that every rare journey is valid, even when it doesn’t look like the textbook version. #RareWordOfTheWeek #RareDisease #RareDiseaseMonth #PatientWorthy ... See MoreSee Less

Patient Worthy

13 hours ago

Connect with stakeholders to create powerful partnerships, advance orphan therapeutics and inspire advocacy at the Rare Disease Summit, March 17-19 in Philadelphia, PA, US. You’ll generate solution-focused approaches surrounding patient access, reimbursement, commercialization, launch, partnering and more. Save 10%: 26PATWOR10. Register at bit.ly/4qrLAbc ... See MoreSee Less

Patient Worthy

19 hours ago

This week on Patient Worthy, we’re shining a spotlight on Retinal Vein Occlusion (RVO).
RVO can feel overwhelming, isolating, or unexpected, but your experience matters! That’s why throughout the week, we’ll be sharing meaningful insights, uplifting patient voices, and creating a space where individuals and caregivers can speak openly about their journeys.
Whether you’ve faced sudden vision changes, navigated treatment, or are still searching for answers, your story has the power to guide and encourage someone else walking a similar path.
💜 Want to learn more or join the conversation?
Visit patientworthy.com for the latest updates, resources, and real patient perspectives.
📣 Have a story to share?
Click the link below, we’d be honored to hear your journey.
bit.ly/4dV7gru
Your voice could be the light someone else needs today.
#RVO #RetinalVeinOcclusion #EyeHealth #PatientWorthy #ShareYourStory ... See MoreSee Less