When Two Rare Diseases Collide: What My Son Taught Me About Immune System Complexity
- February 16, 2026
Who is at Risk of Getting the Deadly Nipah Virus?
FDA Grants Priority Review to Takeda’s Oveporexton: A Potential Game-Changer for Narcolepsy Type 1 Treatment
CHMP Backs Novo Nordisk’s Semaglutide for MASH, Opening Door to EU Approval
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Who is at Risk of Getting the Deadly Nipah Virus? bit.ly/3ZPxkyh Read now at PatientWorthy.com
#PatientWorthy #NipahVirus
Meet Tasheena! Her son, Asher, is living with severe pulmonary arterial hypertension (PAH), stemming from Adams-Oliver Syndrome (AOS). She shares the joys and struggles of being a caregiver, as well as the resilience and perseverance of patients diagnosed with rare diseases. In honor of Rare Disease Month, Tasheena shares her family's story to raise awareness and to encourage others to educate themselves about rare disease. To lift up other patients and families, and to see them for the amazing survivors they are!
#PulmonaryArterialHypertension #pah #Adams-OliverSyndrome #AOS #rarediseasemonth #raredisease #rarebutnotalone #WeCareAboutRare #SHAREYOURSTRIPES #shareyourstory #PatientWorthy
FDA Grants Priority Review to Takeda's Oveporexton: A Potential Game-Changer for Narcolepsy Type 1 Treatment bit.ly/46EY206 Read now at PatientWorthy.com
#narcolepsy #NarcolepsyType1 #NT1 #PatientWorthy
