Editor’s Note: Patient Worthy is proud to bring you part 3 of 5 in a series of excerpts written by Dana Langston.
Part 3: The Mental Battlefield
Chapter 12: Doing it All Over Again
Every night, I lay my head down, thankful the LifeVest didn’t go off. Every morning, we wake up and realize we have to do it all over again. The waiting. The fixing. The hoping. As long as my sister is at the door and the men are under that Corolla, we are still in the fight. We survive until the next day just to do it all over again, holding onto the belief that eventually, the “no” will turn into a “yes.”
Chapter 13: The Silence of the “Share” Button
We started a CaringBridge and a GoFundMe, but if you aren’t a “social media person” or a blogger, the silence can be deafening. We’ve watched the fund sit there, barely moving. It’s a gut-punch that has nothing to do with who we are—we’ve lived quiet, worked hard, and minded our business. But in a digital world, if you don’t “go viral,” it feels like you’re invisible. We aren’t looking to be famous; we’re just looking to survive until the surgery call comes.
Chapter 14: The Echo of the Empty Room
The depression is a thief. It steals your purpose. Watching my husband and brother-in-law slave away while I sit still feels like a personal failure. In a small town, you are what you do. Being a ‘patient” instead of a “doer” is a slow kind of agony. I feel like a ghost in my own life, watching the people I love work twice as hard to fill the gap I left behind. The silence of the house when they are outside working is a heavy weight all its own.Chapter 1 5: The Ghost of “l Can’t” The mental battlefield is just as hard as the physical one. Some days, the depression is a heavy, suffocating fog. I just want to get up and be the person I was before. I want to take a walk, play with our animals, or just do a simple load of laundry without gasping for air. But I can’t. I am trapped in a body that won’t obey my will. I see our animals looking at me, wondering why 1 1 m not running with them, and it breaks me in a way the heart attack never could.
Chapter 16: Discarded by Design (Expanded)
In the world of corporate checklists, there isn’t a box for “my wife’s heart stopped.” We found out the hard way that to some employers, you are only as valuable as your attendance record. When my heart attack hit, my husband stayed by my side— exactly where a husband should be. But instead of compassion, he was met with a pink slip. He was fired because my “failure” was an inconvenience to their schedule. It added a layer of financial terror to an already desperate medical situation, turning our fight for my life into a fight for our very survival.
Chapter 17: The Warriors in the Wings
When I talk about my “village,” I’m talking about people who are carrying their own crosses while they help me lift mine. Take my sister. Most people don’t know that while she is making sure we eat every single day, she is also fighting her own battle with Multiple Sclerosis (MS). On the days when her own body is trying to betray her, she is still here. She doesn’t just bring the meals; she does our laundry, she helps us take care of our animals, and she makes sure our home still feels like a home. Her strength is a beacon for me when my own is flickering.
Chapter 18: More Than a Meal
In this “gap,” the hunger isn’t just in our stomachs—it’s in our spirits. Sometimes, the thing that saves me isn’t the food or the car part. Sometimes, it’s just the phone ringing. It’s a text to check on my LifeVest. It’s a friend who stops by just to sit on the porch for ten minutes so I don’t feel like a ghost. My village provides the food, yes, but they also provide the companionship that keeps the shadows at bay and reminds me I am still part of the world.
Part 5: The Sons & The Shared Struggle
Chapter 19: The Mirror of My Youngest Son
The irony of my diagnosis is a bitter pill. My youngest son, Jonathan, only 27 years old, has been fighting for his life since he was a child. He suffers from Stage 5 kidney failure and is two years into his second transplant. He lives without a large intestine or a colon and carries a mechanical heart valve. For years, I held his hand through the surgeries. Now, we are mirrors. I listen to the “click” of his valve and the “gong” of my vest, and I realize we are both being kept alive by the grace of God and machines.
Chapter 20: The Mother’s Heart and the Three Sons
At 49, my life revolves around my three sons: Brett is 31, Joshua is 30, and Jonathan is 27. They are the beat of my heart, but seeing the look in their eyes is one of the hardest parts of this “failure.” They are grown men with their own lives, yet when they look at me, I still see the boys who need their momma. It kills me that they have to worry about me this way. I should be taking care of them, not watching them carry the weight of my diagnosis.
Chapter 21 : The Nine Little Reasons
And then there are my nine grandkids. They are the light at the end of every dark day. I want to see them grow, to see every milestone, even if I have to watch from a recliner for now. They are the reason I fight for every breath and every extra beat my heart can manage. They are the future I am clinging to with everything I have left.
Part 6: Facing the Future
Chapter 22: The Truth of the Permanent Scar
I have to be honest: the Internal Defibrillator (ICD) is a lifesaver, but it isn’t a cure. It won’t raise my Ejection Fraction. It won’t give me back the lung capacity to chase my dogs. When the surgery is over, I will still be a woman living with heart failure at 20-25%. Like my youngest son and his mechanical valve, this is who I am for the rest of what will be my life.
Accepting that is a heavy truth, but it’s the only way I can learn to live fully in the 25%.
Chapter 23: This Is Who I Am Now
Accepting that “I am who I am” for the rest of my life is a heavy coat to wear at 49. It means grieving the person I was before the heart attack—the doer, the worker, the one who never sat still. There is no bouncing back from this; there is only moving forward with a different stride. It means being okay with sitting on the porch while the men work on the car, knowing my contribution is my presence and my constant gratitude.
Chapter 24: Living in the 25%
My heart might be permanently damaged, and my EF might be settled in the low numbers, but my life isn’t over. I am a heart warrior, a wife, a sister, and a Kentuckian. The machine in my chest will keep me here, but the people in my house are what make me stay. We are still waiting on that surgery call. We are still waiting on the system to see us. But mostly, we are just learning to live, day by day, in the 20-25%.
