As reported by PharmaBiz, the European Medicines Agency’s Committee for Orphan Medicinal Products (COMP) has issued a positive opinion supporting Orphan Drug Designation (ODD) for
Maple syrup urine disease (MSUD) represents one of medicine’s most deceptive challenges, a rare inherited metabolic disorder where patients can appear dangerously well while their
A gene-editing protein, small enough to fit into adeno-associated viruses (AAVs) that infect humans has been identified. As reported by Precision Medicine, these compact AAVs
I was introduced to Amber Olsen, the “mama bear” in my new documentary film, The Zebra and the Bear, in the spring of 2016. A
The NHS has dramatically expanded access to a life-saving cancer therapy, according to NHS England, offering approximately 300 blood cancer patients in England annually a
A groundbreaking achievement in genetic medicine has emerged as the European Medicines Agency (EMA) recommended approval of Waskyra (etuvetidigene autotemcel), the first gene therapy specifically
As reported on PharmaBiz, the National Organization for Rare Disorders (NORD) has announced a new request for proposals (RFP) aimed at nonprofit patient advocacy groups
The developer of the Promega OncoMate MSI Dx Analysis System recently announced the FDA’s approval of the system identifying patients who may benefit from the
As reported on World Pharma News, a collaborative research team from the Medical University of Vienna, HUN-REN Research Centre for Natural Sciences, and Eötvös Loránd
Hypereosinophilic syndrome (HES) patients may finally have a meaningful treatment option. According to an article published at BusinessWire.com, AstraZeneca’s FASENRA (benralizumab) has shown statistically significant
For HIV awareness month we had the privilege of meeting Jessica Glaspie. She has been living with HIV for 15 years and advocating for over 10 years. She is the author of the memoir "Life, Love, and HIV" and takes great pride in her advocacy work as an educator and motivational speaker. She is a single mother of 3 beautiful, HIV negative children and loves traveling! To read Jessica's full story clink the link here:https://bit.ly/4qggIuu
#HIV #HIVawareness #patientworthy #shareyourstory
Managing energy during the holidays is tough, especially for patients and caregivers. Remember: it’s okay to rest, set boundaries, and focus on what matters most. Wishing you restful, meaningful moments this season! #HolidaySelfCare #ChronicIllness #SelfCareMatters #PatientWorthy
Breakthrough in COPD Management: GSK's Nucala Advances Toward European Approval for Eosinophilic Patients bit.ly/453ZJmZ Read at PatientWorthy.com
#PatientWorthy #COPD #ChronicObstructivePulmonaryDisease #GSK
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