Measles
Measles: A Highly Contagious Virus
Bangladesh did not meet its 2026 measles target due to vaccination gaps in 2024 and 2025 according to a report in Reuters. The following year
When Past Medical Experiences Shape Future Healthcare Decisions: Understanding Medical Trauma, Finding My Voice, and Moving Forward Together
- November 8, 2026
Study Finds a Shared Weak Point in Some Cancers With BAF Mutations
Merz Completes Enrollment for Phase 3 XEOMIN Migraine Studies Ahead of Schedule
A Ray of Hope for Improving CAR-T for AML
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Rare Disease
The 2026 Abbey Meyers Khushi Bridging RARE Award Honorees
IndoUSrare and GORD Foundation are honored to announce the 2026 Abbey Meyers Khushi Bridging RARE Award Honorees: Rare Disease is a global problem, a human
Tay-Sachs Disease
Suffering and Faith
Editor’s Note: Patient Worthy is honored to present this story, originally written by Blyth Lord, founder of Courageous Parents Network. I was asked earlier this
Hepatocellular Carcinoma
El cáncer de hígado y las comunidades hispana y afrodescendiente en Estados Unidos
Nota del editor: Para Patient Worthy es un honor compartir este artículo, que nos fue enviado originalmente por Andrés Contreras. El cáncer de hígado es
Hepatocellular Carcinoma
Liver Cancer and the Hispanic and Black Communities in the United States
Editor’s Note: Patient Worthy is honored to share this article, originally submitted to us by Andrés Contreras. Liver cancer is the third leading cause of
Neurofibromatosis Type 1
More Than 50 Surgeries and Still Becoming
My name is Kelli Frederick, M.A., and I have lived with neurofibromatosis for my entire life. I have also undergone more than 50 facial surgeries.
Uveal melanoma
Roginolisib: What Two New Studies Tell Us—and What They Don’t Yet Show
Two papers published in Nature Communications report new findings about roginolisib, an experimental cancer drug being developed by iOnctura. One study describes how the drug
Acute lymphoblastic leukemia
Make-A-Wish Side Effect
Editor’s Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea. To see the article, originally written by Natalia
Rare Disease
When Nothing Hurts: Why Advocating for Your Own Health Matters
Editor’s Note: The following article was submitted to Patient Worthy by Regina Portnoy. “Nothing hurts. I feel fine. Why would I need to see a
Lung Cancer
Becoming the Patient: How Lung Cancer Changed My Life, My Purpose, and My Voice
Editor’s Note: Patient Worthy is honored to share this patient story, submitted to us by Shelly Glenn. For most of my career, I worked on
Epilespy
Jon’s Epilepsy-Caregiver Story
Editor’s Note: Patient Worthy is honored to share the following caregiver story, submitted to us by Jon Scheinman of The Epilepsy Foundation. To see the
Acoustic neuroma
Vanessa’s Acoustic Neuroma Story
There are parts of 2024 that I know only through photographs and the stories my sister has told me. In some of the pictures, I
Retinitis pigmentosa
Optogenetic Therapy
As reported on Inside Precision Medicine, a novel optogenetics-based treatment may offer a new path toward restoring some visual function in people with advanced retinitis
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep
October 9th: PANS/PANDAS Awareness Day
Aspire: “ We aspire to improve the lives of children and adults affected by PANS/PANDAS and other immune-related encephalopathies by closing the gap between symptom
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