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Choosing Hope

Editor’s Note: Patient Worthy is honored to share this piece from our friends at Elephants & Tea, originally written by Katie Newbaum. To see the

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14 hours ago

Today on HAE Awareness Day, we’re recognizing the strength of those living with hereditary angioedema (HAE) — a rare condition that can cause sudden, painful, and unpredictable swelling attacks.
For many, HAE impacts far more than what people can see. It can affect daily routines, relationships, work, school, and the simple comfort of knowing what tomorrow will look like.
Today is about spreading awareness, encouraging understanding, and reminding the HAE community that their experiences matter and their voices deserve to be heard.

#HAEAwarenessDay #HAEAwareness #HAE #Active4HAE #PatientWorthy
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Today on HAE Awareness Day, we’re recognizing the strength of those living with hereditary angioedema (HAE) — a rare condition that can cause sudden, painful, and unpredictable swelling attacks.
For many, HAE impacts far more than what people can see. It can affect daily routines, relationships, work, school, and the simple comfort of knowing what tomorrow will look like.
Today is about spreading awareness, encouraging understanding, and reminding the HAE community that their experiences matter and their voices deserve to be heard.

#HAEAwarenessDay #HAEAwareness #HAE #Active4HAE #PatientWorthy
14 hours ago

One bite can change everything.

For 33 million Americans with food allergies, “just try it” isn’t harmless. It’s anaphylaxis. It’s ER visits. It’s reading every label, carrying epinephrine everywhere, and teaching everyone around you how to save your life.

Food Allergy Awareness Week is about more than awareness. It’s about action:

Ask before you share food.
Read labels, even if you’ve bought it before.
Take “no thank you” seriously.
Learn the signs of anaphylaxis and how to use an EpiPen.
Never pressure someone to eat something.

Inclusion tastes better than exclusion. And safety should never be optional.

#FoodAllergyAwarenessWeek #Anaphylaxis #PatientWorthy
... See MoreSee Less

One bite can change everything.

For 33 million Americans with food allergies, “just try it” isn’t harmless. It’s anaphylaxis. It’s ER visits. It’s reading every label, carrying epinephrine everywhere, and teaching everyone around you how to save your life.

Food Allergy Awareness Week is about more than awareness. It’s about action:

Ask before you share food.
Read labels, even if you’ve bought it before.
Take “no thank you” seriously.
Learn the signs of anaphylaxis and how to use an EpiPen.
Never pressure someone to eat something.

Inclusion tastes better than exclusion. And safety should never be optional.

#FoodAllergyAwarenessWeek #Anaphylaxis #PatientWorthy

TSC is a genetic disorder that causes benign tumors to grow in the brain, heart, kidneys, lungs, skin, and eyes. 1 million people worldwide live with it. Many spend years searching for answers before diagnosis.

TSC Global Awareness Day is about changing that. See the signs. Fund the research. Support the families navigating appointments, medications, and uncertainty every single day. Because awareness creates earlier diagnosis. Earlier diagnosis creates better outcomes. And no one should face TSC alone.

#TSCGlobalAwarenessDay #TuberousSclerosisComplex #PatientWorthy
... See MoreSee Less

TSC is a genetic disorder that causes benign tumors to grow in the brain, heart, kidneys, lungs, skin, and eyes. 1 million people worldwide live with it. Many spend years searching for answers before diagnosis.

TSC Global Awareness Day is about changing that. See the signs. Fund the research. Support the families navigating appointments, medications, and uncertainty every single day. Because awareness creates earlier diagnosis. Earlier diagnosis creates better outcomes. And no one should face TSC alone.

#TSCGlobalAwarenessDay #TuberousSclerosisComplex #PatientWorthy
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