Nerve Damage
What’s Missing From Many Surgeries? The Answer Might Be Your Nerves
There’s a lot to consider when you’re facing tumor removal surgery. Think about mandible or jaw surgery, for example. Your face is part of every
Rezdiffra (Resmetirom) Shows Sustained Benefits in MASH Cirrhosis Over Two Years
- December 13, 2025
Sugar-Coated Deception: Discovery of Aggressive Lymphoma Subtype Opens Door to Personalized Cancer Treatment
PopEVE Aims to Fast-Track Rare Disease Diagnoses by Ranking Genetic Variant Severity
Mann-type DLBCL: Sugar Signature Reveals High-Risk Lymphoma and New Therapeutic Avenues
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Prader-Willi Syndrome
Soleno Therapeutics Achieves Historic Q3 Milestone: VYKAT XR Drives Company to First Profitable Quarter
Soleno Therapeutics marked a significant turning point in its corporate history by reporting its first profitable quarter, driven by robust sales of VYKAT XR, its
HIV/AIDS
HIV Stigma Isn’t Gone; It’s Just Different: What Experts See in 2026
By Thresa Giles, CEO — Hope & Help Center of Central Florida Since HIV was first identified in 1983, there has been a growing, persistent
Alpha gal syndrome
Alpha-Gal Syndrome: Meat Allergy Cases Surge Across the U.S.
A once-rare condition that causes severe allergic reactions to red meat, known as alpha-gal syndrome (AGS), is experiencing a dramatic rise across the United States,
Transthyretin amyloid cardiomyopathy
New Tool May Detect Stroke Risk in Patients with ATTR-CM
As reported on MSN, a preliminary study presented at the American Heart Association’s Scientific Sessions 2025 suggests that a non-invasive method for assessing atrial function
Rare Disease
Researchers at University of Prague Unveil Lab-on-a-Scalpel
Professor Zdeněk Sofer of the University of Prague and his team developed and validated a “Lab-on-a-Scalpel” concept which is a surgical tool incorporating an integrated
Transthyretin amyloid cardiomyopathy
Restless Nights: How ATTR-CM Impacts Sleep and What You Can Do
vTransthyretin amyloid cardiomyopathy (ATTR-CM) is a progressive heart condition driven by the buildup of abnormal transthyretin protein in the heart muscle and, at times, in
Renal cancer
Merck’s Welireg Shows Promise in Kidney Cancer Across Two Major Trials
Merck & Co. announced positive results from two Phase 3 studies of its kidney cancer drug Welireg, signaling potential expansion into earlier stages of disease.
Mutation in NAMPT Axonopathy (MINA) syndrome
Scientists Discover New Genetic Disorder: MINA Syndrome Impairs Nerve and Muscle Function
A groundbreaking discovery by an international team led by Shinghua Ding at the University of Missouri has revealed a previously unknown genetic disorder affecting motor
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Thank you, Colin, for sharing your NF1 journey with us! Stories like yours helps raise awareness, challenge misconceptions, and bring visibility to the rare disease community! #NF1 #nf1awareness #PatientStory #shareyourstory #PatientWorthy
Rezdiffra (Resmetirom) Shows Sustained Benefits in MASH Cirrhosis Over Two Years bit.ly/3KxPosC Read now at PatientWorthy.com
#PatientWorthy #Mash #metabolicdysfunction-associatedSteatohepatitis #rezdiffra
Hunter Syndrome affects many parts of the body, and knowing the signs can make a big difference in early support and care. Raising awareness helps families, caregivers, and the community better understand this rare condition. If you would like to share your story with Hunter Syndrome, click here: bit.ly/4dV7gru
#HunterSyndrome #RareDiseaseAwareness #shareyourstory #PatientWorthy
