As reported on Healio, a novel biologic targeting two key angiogenic pathways has shown encouraging early results for the treatment of wet age-related macular degeneration
Editor’s Note: This story is a continuation of Jenny Decker’s global sailing voyage. To see the original article, please click here. Many of our Patient
AstraZeneca has received European Commission approval for Imfinzi (durvalumab) in combination with FLOT chemotherapy, a landmark achievement representing the first immunotherapy-based regimen to demonstrate survival
People with rare and chronic disease often suffer from long term pain. New ways to alleviate this pain are needed. According to a press release
“Do not go gentle into that good night. Rage, rage against the dying of the light.” –Dylan Thomas One may have thought, after six months
In a recent press release, Structure Therapeutics has reported encouraging topline results from its Phase 2 ACCESS clinical program evaluating aleniglipron, an investigational once-daily oral
As reported on Inside Precision Medicine, scientists in Germany have made an exciting discovery that could help children with a very rare and serious illness
The biotechnology sector witnessed a striking demonstration of expedited drug development this week, with Boehringer Ingelheim receiving FDA approval for an innovative lung cancer therapy
As reported by Pharma Times, Elevara Medicines has initiated a phase 2b clinical study evaluating ELV001, an investigational oral CDK4/6 inhibitor, in people with rheumatoid
Pictured above: Giuliana Noratto, Ph.D., (left) and Lauren Stranahan, Ph.D., led research showing that compounds in dark sweet cherries may help slow the growth and
Daiichi Sankyo has taken a significant step toward expanding treatment options in Japan by submitting regulatory approval for Enhertu, an advanced cancer-fighting drug designed to
As reported by FiercePharma, the U.S. Food and Drug Administration has approved the first fully independent generic version of GlaxoSmithKline’s widely used asthma inhaler, Flovent,
You can not see, hear, or touch my rare condition. I STINK! (LITERALLY) I wasn’t sure if I was going to tell my story. But
Researchers have created a fundamentally new class of HIV-fighting molecules by combining two separate antiviral mechanisms into a single engineered protein. Early laboratory results, reported
As reported on BioPharmaDive, UCB has reported positive results from a head-to-head clinical trial showing that its anti-inflammatory biologic Bimzelx was more effective than AbbVie’s
Editor’s Note: Patient Worthy is proud and honored to share Jennifer’s story with cystic fibrosis and colon cancer, originally published on the Cystic Fibrosis Research
The biotechnology sector experienced significant positive developments this week, with Xenon Pharmaceuticals’ seizure medication achieving a decisive late-stage victory while regulatory pathways accelerated for several
As reported on Healio, glucagon-like peptide-1 (GLP-1) receptor agonists, best known for treating diabetes and obesity, are emerging as unexpected players in breast cancer care.
Denford has been living with HIV since December 2003. He is currently the planning council manager for a program that offers free care and support services to those living with HIV. Denford is also a member of NMAC's HIV 50+ Strong & Healthy Cohort, which is comprised of older Americans who have a demonstrated record of advocating for people 50 years and older who are living with HIV. He is the newly elected co-chair of the National HIV & Aging Advocacy Network's (NHAAN) Heterosexual Men Living with HIV Special Interest Group (SIG). Denford has a certification in substance abuse counseling and is a volunteer mental illness teacher with the National Alliance of Mental Illness (NAMI). Denford is also a veteran who served in the U.S. Army. “I want people to know they can be the CEO of their own life.”
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For many people in the rare disease community, nerve-related symptoms can be difficult to describe and even harder to explain. Unusual sensations like burning, tingling, or electric-like feelings may occur even when there’s no visible cause. Raising awareness of these neurological symptoms helps bring attention to the complex ways rare diseases can affect the body and why listening to patient experiences is so important.
#RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
We are currently seeking individuals who have been diagnosed with HIV and are willing to share their personal experiences.
Sharing your story is powerful. By speaking about your journey, you can help reduce stigma, increase understanding, and provide hope to others who may feel isolated or uncertain after diagnosis. Your voice can help educate communities, support advocacy efforts, and contribute to improved care and awareness for people living with HIV.
If you or someone you know has been diagnosed with HIV and is interested in learning more, visit patientworthy.com
To share your story, click the link below.
bit.ly/4dV7gru
#patientsneeded #PatientWorthy #HIV #hivawareness #shareyourstory #yourstorymatters
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