Johnson & Johnson announced that the U.S. Food and Drug Administration (FDA) has granted Priority Review to IMAAVY® (nipocalimab-aahu), marking a significant milestone as the
As reported on Business Wire, Enveda, a clinical-stage biotechnology company focused on discovering novel small-molecule medicines, has reported encouraging results from a Phase 1b study
A recent article from Inside Precision Medicine states: For decades, systemic lupus erythematosus (SLE) has resisted tidy solutions, a shapeshifting autoimmune disease that crosses into
AstraZeneca has announced positive results from the pivotal phase III MIRANDA trial of tozorakimab, a groundbreaking first-in-class monoclonal antibody designed to treat Chronic Obstructive Pulmonary
On January 20, 2014, at 54 years old, I experienced what I casually called an “anxiety numbness event.” My left thumb and index finger went
The US Food and Drug Administration (FDA) has approved Idvynso, a groundbreaking two-drug single-tablet regimen combining 100 mg doravirine and 0.25 mg islatravir, for treating
My story began very suddenly on May 4th, 2025, when I was home from graduate school visiting my family. It had been a great day,
Glioblastoma multiforme (GBM) is the most common malignant brain tumor in adults and remains one of the most difficult cancers to treat. Characterized by aggressive
WebMD published a story about a young woman, Maddie, who had spent nine years in wheelchair confinement resulting from a rare metabolic disease related to
Health Canada has officially approved Cysklar® (cysteamine ophthalmic solution) 0.44%, marking a significant breakthrough for Canadians living with cystinosis. According to BusinessWire.com, the approval enables
Putting feelings into words does more than help you reflect. Brain imaging research shows it can shift activity inside emotional circuits. If you are someone
Most people see the bed first. That’s what defines me to them. The bed in the living room, the fact that I’m always in it.
As reported by Business Wire, Enanta Pharmaceuticals has initiated its first clinical study of EDP-978, a novel oral inhibitor of the KIT receptor tyrosine kinase
Editor’s Note: Patient Worthy is honored to share this article from our friend Jessica Lynn. To see the article in its original format, please click
Cancer cachexia represents one of oncology’s most overlooked catastrophes. Patients waste away, lose appetite, and deteriorate despite receiving chemotherapy, yet few treatment options exist to
I had learned that the many twists and turns on our rare disease path were similar to the families we met Originally published on May 11, 2022,
I was born in Long Island, New York, and raised in Southern California, where I grew up surrounded by sunshine and the beauty of the
Diabetic macular edema represents a silent threat to working professionals across America. The condition, which causes fluid accumulation in the macula, the eye’s central focusing
While there is currently no cure for Becker muscular dystrophy, treatment and supportive care can help improve quality of life, preserve mobility, and manage complications over time. From physical therapy and cardiac care to emotional support and adaptive tools, every aspect of management plays a role in helping individuals maintain independence and daily function. Awareness doesn’t just educate — it encourages support, research, and hope for better outcomes in the future. 💙
Click the link to share your story - bit.ly/3VuxFDV
#BeckerMuscularDystrophy #ChronicIllness #PatientWorthy
🦴 May is Arthritis Awareness Month 💙
Arthritis affects more than 58 million adults in the U.S.—and it’s a leading cause of disability worldwide.
But arthritis isn’t just about aging. It impacts people of all ages, with over 100 different types of arthritis and related conditions.
✨ What you should know:
• Early diagnosis matters
• Staying active can help reduce symptoms
• Awareness leads to better support and care
Let’s work together to raise awareness, support those affected, and promote healthier, more active lives.
#ArthritisAwarenessMonth #ChronicIllness #HealthAwareness #PatientWorthy
May is Celiac Disease Awareness Month 🌾💚
Celiac disease is more than a food intolerance — it’s an autoimmune condition where consuming gluten triggers the immune system to damage the small intestine. While digestive symptoms are common, many people also experience fatigue, anemia, headaches, joint pain, skin issues, or neurological symptoms that often go overlooked or misdiagnosed.
Awareness matters because early diagnosis and treatment can help prevent long-term complications and improve quality of life. Listening to your body, advocating for answers, and understanding the importance of a strict gluten-free lifestyle can make a life-changing difference for those living with this condition.
#CeliacDisease #GlutenFree #PatientWorthy
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