Researchers have developed an innovative deep learning model capable of accurately differentiating thyroid eye disease (TED) from orbital myositis using computed tomography (CT) imaging, potentially
As reported on Drugs.com, REGENXBIO has announced that the U.S. Food and Drug Administration (FDA) has halted clinical testing of its investigational gene therapies RGX‑111
Several highly esteemed Institutes such as the Mayo Clinic and CONICET have identified critical elements contributing to the aggressiveness of Pancreatic cancer. The survival rate
Moderna and Merck have announced promising five-year data for a groundbreaking personalized cancer treatment that combines mRNA technology with immunotherapy to prevent melanoma from returning
As reported on Science Daily, a breast cancer vaccine tested more than 20 years ago is drawing renewed scientific interest after researchers discovered that every
Editor’s Note: Patient Worthy is honored to share part 2 in an ongoing 10-part series, written and shared with us by Elena Genik. Before the
Cancer immunotherapy represents one of modern medicine’s greatest achievements, yet it’s also one of its most frustrating paradoxes: a treatment that works miracles for some
As reported on BioSpace, Moderna has entered a commercialization partnership with Italy‑based Recordati to support the development of mRNA‑3927, an investigational mRNA therapy for propionic
Osteosarcoma is a diagnosis no family should ever have to face. It is the most common primary bone cancer in children and adolescents, yet treatment
A groundbreaking genetic study published in The Journal of Clinical Endocrinology & Metabolism and reported by ScienceDaily.com has revealed that obesity and high blood pressure
Twenty years is a long time to believe a cancer chapter has closed. For two decades after my radical prostatectomy, I lived with the quiet
Editor’s Note: Patient Worthy is honored to share part 1 in an ongoing 10-part series, written and shared with us by Elena Genik. When Everything
A growing body of research shows that sleep quality, dietary sodium, and hypertension are more closely linked than once believed — and two major healthcare
Vera Therapeutics announced a major milestone in drug development on January 7, 2026, when the U.S. Food and Drug Administration granted Priority Review to the
As reported by the European Pharmacy Review, a combination approach using Johnson & Johnson’s small‑molecule therapy Caplyta (lumateperone) alongside standard antidepressants continues to show promising
A newly published Phase 1/2 study in The New England Journal of Medicine, and reported on by the Manila Times, highlights promising early results for tividenofusp
A New Approach to a Persistent Problem Celcuity has reached a critical inflection point in its pursuit of a novel breast cancer treatment. The FDA’s
As reported on Healio, glucagon-like peptide-1 (GLP-1)–based therapies are rapidly reshaping the landscape of diabetes and chronic kidney disease (CKD) management. Originally developed for glycemic
Behind every rare diagnosis is a story that deserves understanding.
💬 What’s one thing you wish people truly understood about rare disease?
Drop your thoughts below! #RareDiseaseMonth #RareDiseaseAwareness #RareDisease #PatientWorthy #ReplyAll
During Rare Disease Month, Patient Worthy is honored to share a story from Steven who has been diagnosed with Waldenström's macroglobulinemia.
"My name is Steven and I am 73 years old, and in 2014, I was diagnosed with Waldenström's macroglobulinemia. Having a rare blood disease means staying on top of my health by constant follow-ups at a specialist several states away.
Having this rare disease means taking it one day at a time. I want to do things on my own, but I appreciate all of the help I get as my activities are limited at work.
I look forward to February each year as Rare Disease Month calls attention to those who have been diagnosed with a rare disease.
February is also another chance to advocate for rare disease as I hope one day there will be a cure for Waldenström's macroglobulinemia instead of just being treatable."
#RareDiseaseMonth #RareDisease #RareButNotAlone #WeCareAboutRare #ShareYourStripes #ShareYourStory #PatientWorthy
Turner syndrome is a rare genetic disorder affecting females, caused by a missing or partial X chromosome. It leads to various physical and developmental issues including heart defects, growth problems and learning difficulties. Diagnosis is often delayed, especially in milder cases, which can impact treatment and well-being. Key features include short stature, hearing loss, and cognitive challenges, but many individuals have normal intelligence and can thrive with timely care. Click the link in our bio to share your story with us today. #girlshealth #turnersyndromeawareness #PatientWorthy 💐
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
