Bladder cancer
Jimi’s Fight Against Bladder Cancer
I was born in Long Island, New York, and raised in Southern California, where I grew up surrounded by sunshine and the beauty of the
Poolbeg Pharma Expands Global IP Position with Canadian Patent for POLB 001 in CRS
- May 17, 2026
How to Advocate for Yourself During Appointments
GLP-1–Based Therapies Linked to Reduced Risk of Sleep Apnea in Obesity
Connor’s Leukodystrophy Story
LISTEN TO OUR PODCAST
THE LATEST FROM PATIENT WORTHY
Diabetic macular edema
A Six-Month Solution: How Eclipse Life Sciences Is Tackling a Persistent Vision Problem
Diabetic macular edema represents a silent threat to working professionals across America. The condition, which causes fluid accumulation in the macula, the eye’s central focusing
Lymphoma
ModeX Advances Novel Tetraspecific Antibody Into First-in-Human Study for B‑Cell Lymphoma
As reported on PharmaBiz, ModeX Therapeutics, a clinical-stage biotechnology company within OPKO Health, has begun dosing patients in a first-in-human clinical trial evaluating MDX2003, a
Malaria
Blood Supply, Malaria, and the Contribution of Grifols Pharma
A New Shield for the Blood Supply: Grifols Earns FDA Approval for Malaria Test Grifols has reached a significant milestone in transfusion medicine with the
Skin Disease
Galderma’s Latest Peptide Innovation Addresses a Critical Gap in Cosmetic Dermatology
The aesthetic skincare market has long overlooked a fundamental principle: skin preparation matters as much as the procedure itself. According to PharmaBiz.com, Galderma’s Alastin brand
Major Depressive Disorder
Motif Neurotech Gains FDA Clearance to Launch First-in-Human Trial of Implantable BCI for Depression
As reported on Business Wire, Motif Neurotech has received clearance from the U.S. Food and Drug Administration (FDA) to initiate its first clinical study evaluating
How to Transform Your Skin with Simple Natural Care Habits
For patients with rare diseases and the caregivers in healthcare who support them, skin changes often become a daily friction point rather than a simple
Pancreatic Cancer
Breakthrough in Pancreatic Cancer Treatment: How Revolution Medicines’ RAS Inhibitor Is Reshaping Patient Outcomes
Pancreatic cancer remains one of medicine’s most formidable challenges, and recent clinical developments suggest a potential turning point. Revolution Medicines presented compelling evidence this week
IgA Nephropathy (IgAN)
Ultomiris Reduces Proteinuria in Phase III Trial for IgA Nephropathy
Early Phase III data suggest C5 complement inhibition may alter disease course in IgAN In a recent press release, AstraZeneca reported that Ultomiris (ravulizumab) has
Rare Disease
Regular Yoga Practice Improves Cardiometabolic Health
Yoga is often celebrated for its ability to help people find their “zen,” but new research shows it might be doing some heavy lifting for
Parkinson's Disease
AskBio Scales Up Gene Therapy Manufacturing for Landmark Parkinson’s Disease Trial
AskBio Inc., a gene therapy subsidiary of pharmaceutical giant Bayer AG, has taken a significant step forward in advancing treatment options for Parkinson’s disease. According
Moebius Syndrome
Awareness Isn’t the Hard Part — What 18 Years in the Moebius Syndrome Community Has Taught Me
For nearly two decades, I’ve been building and maintaining a global online community for individuals and families affected by Moebius syndrome, a rare neurological condition
Multiple Sclerosis
From Overlooked to Unstoppable: The Mendoza Story That Inspired a Nation
Fernando Mendoza’s journey to becoming the Las Vegas Raiders’ first overall NFL Draft pick is not a typical underdog narrative, it’s a testament to resilience,
Breast Cancer
Choosing Hope
Editor’s Note: Patient Worthy is honored to share this piece from our friends at Elephants & Tea, originally written by Katie Newbaum. To see the
Rare Disease
Ophthalmologist Emerges as Leading Candidate to Head FDA Vaccine Division
As reported on NBC News, an ophthalmologist with a history of criticizing the U.S. government’s Covid-19 vaccine strategy is emerging as a leading contender to
Glioblastoma
Maha & Baba: A Caregiver’s Journey Through Glioblastoma
My name is Maha, and I had the privilege of being my father’s — my Baba’s — caregiver. I’ll be blunt; it was tough. When
Psoriasis
One-Year Data Reinforces Icotyde’s Position as Transformative Psoriasis Therapy: Sustained Clearance and Favorable Safety Profile
Johnson & Johnson announced promising long-term efficacy and safety data for Icotyde (icotrokinra), the first and only targeted oral peptide that precisely blocks the IL-23
Multiple Sclerosis
Roche’s Elecsys NfL Blood Test Gains CE Mark for Monitoring Neuroinflammation in MS
As reported on PharmaBiz, Roche has secured CE mark approval for its Elecsys Neurofilament Light Chain (NfL) assay, a blood-based test designed to help detect
FEATURED
UPCOMING EVENTS
SIGN UP FOR OUR NEWSLETTER
🧠 International Oligodendroglioma Day 🧠
Today we raise awareness for oligodendroglioma, a rare type of brain tumor, and stand with the patients, caregivers, and families navigating its impact every day.
By sharing stories, supporting research, and spreading understanding, we help shine a light on a condition that deserves greater visibility and compassion.
Together, we can amplify voices, foster connection, and support hope within the brain tumor community.
#internationaloligodendrogliomaday #oligodendroglioma #BrainTumorAwareness #rarediseaseawareness #PatientWorthy #shareyourstory
Today on HAE Awareness Day, we’re recognizing the strength of those living with hereditary angioedema (HAE) — a rare condition that can cause sudden, painful, and unpredictable swelling attacks.
For many, HAE impacts far more than what people can see. It can affect daily routines, relationships, work, school, and the simple comfort of knowing what tomorrow will look like.
Today is about spreading awareness, encouraging understanding, and reminding the HAE community that their experiences matter and their voices deserve to be heard.
#HAEAwarenessDay #HAEAwareness #HAE #Active4HAE #PatientWorthy
One bite can change everything.
For 33 million Americans with food allergies, “just try it” isn’t harmless. It’s anaphylaxis. It’s ER visits. It’s reading every label, carrying epinephrine everywhere, and teaching everyone around you how to save your life.
Food Allergy Awareness Week is about more than awareness. It’s about action:
Ask before you share food.
Read labels, even if you’ve bought it before.
Take “no thank you” seriously.
Learn the signs of anaphylaxis and how to use an EpiPen.
Never pressure someone to eat something.
Inclusion tastes better than exclusion. And safety should never be optional.
#FoodAllergyAwarenessWeek #Anaphylaxis #PatientWorthy
