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Rare Disease

It Was All a Dream

Editor’s Note: Patient Worthy is honored to share Michelle Patidar’s patient story, provided to us by our friends at Elephants & Tea. To see the

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46 minutes ago

Jessica Glaspie was born and raised in Zion, IL and currently resides in the DFW area in Texas. She has been living with HIV for 15 years and advocating for over 10 years. At just 22 years old she visited the doctor, complaining of swollen lymph nodes in her neck. Her physician drew some blood and did a biopsy. When the results came back, the doctor delivered harrowing and unexpected news: She had tested positive for HIV. Jessica is the author of the memoir "Life, Love, and HIV" and takes great pride in her advocacy work as an educator and motivational speaker. She is a single mother of 3 beautiful, HIV negative children and loves traveling!
If you are interested in sharing your healthcare journey, click the link: bit.ly/4dV7gru
#HIV #shareyourstory #patientworthy #lifelovehiv
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CSNK2A1 Foundation #raresiblings #SiblingsMatter💬 Sibling Voices Matter

The Sibling Panel Summary from our July Conference is now live on our website! This powerful conversation highlights the experiences, challenges, and perspectives of siblings growing up alongside a loved one with OCNDS.

From connection to advocacy, these insights remind us why siblings play such an important role in our community.

👉 Read the summary here: loom.ly/GbqdPVE

💙 Thank you to the siblings who shared their voices and helped move this conversation forward.

#OCNDS #CSNK2A1 #BoldBreakthroughs #SiblingPanel #SiblingsMatter
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CSNK2A1 Foundation  #raresiblings #SiblingsMatter

#Be The Match. Your stem cells can save a life. Now normally collected through blood like donating blood. You must be 40 or under to join the registry. A simple saliva sample on a cue tip does the trick. Call the @NMDP and ask for a kit to be sent to you. ... See MoreSee Less

#Be The Match. Your stem cells can save a life. Now normally collected through blood like donating blood. You must be 40 or under to join the registry. A simple saliva sample on a cue tip does the trick. Call the @NMDP and ask for a kit to be sent to you.Image attachmentImage attachment
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