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15 minutes ago

🌍Global Accessibility Awareness Day
Today, we recognize the importance of creating a world where everyone can participate fully—online and beyond.
Digital accessibility ensures that websites, apps, and technology are usable for people of all abilities. From captions and screen readers to inclusive design, accessibility isn’t just a feature—it’s a necessity.
✨ When we design with accessibility in mind, we create better experiences for everyone.
Let’s continue to learn, advocate, and build a more inclusive, accessible future—together.
#GAAD #PatientWorthy #InclusiveDesign #DigitalInclusion #GlobalAccessibilityAwarenessDay
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🌍Global Accessibility Awareness Day
Today, we recognize the importance of creating a world where everyone can participate fully—online and beyond.
Digital accessibility ensures that websites, apps, and technology are usable for people of all abilities. From captions and screen readers to inclusive design, accessibility isn’t just a feature—it’s a necessity.
✨ When we design with accessibility in mind, we create better experiences for everyone.
Let’s continue to learn, advocate, and build a more inclusive, accessible future—together.
#GAAD #PatientWorthy #InclusiveDesign #DigitalInclusion #GlobalAccessibilityAwarenessDay

Learning your limits can be one of the most difficult — and most important — parts of navigating life with a chronic or rare illness. Many people spend time figuring out what triggers symptoms, how to pace themselves, and when their body is asking for rest before reaching complete exhaustion.
Over time, listening to those signals and adjusting accordingly can become an important part of managing daily life and protecting overall well-being.

#raredisease #rarediseaseawareness #chronicillness #chronicillness #chronicillnessawareness #PatientWorthy
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Learning your limits can be one of the most difficult — and most important — parts of navigating life with a chronic or rare illness. Many people spend time figuring out what triggers symptoms, how to pace themselves, and when their body is asking for rest before reaching complete exhaustion.
Over time, listening to those signals and adjusting accordingly can become an important part of managing daily life and protecting overall well-being.

#RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllness #ChronicIllnessAwareness #PatientWorthy

Friday, May 29th ZOOM United Porphyrias AssociationImportant update 👀

Our Young AHP ConnectUp with Hailey Brionez has been rescheduled to:
🗓 May 29
⏰ 6 PM ET

This is a supportive space for teens and young adults living with Acute Hepatic Porphyria (AHP), including AIP, HCP, VP, and ADP, to connect, share experiences, and feel understood by others navigating similar journeys.

You are not alone 🫂

👉 Please register to receive the Zoom link:
www.porphyria.org/events/ahpyouth

We hope to see you there ✨

#porphyria #AHP #raredisease #youngadults #patientcommunity
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Friday, May 29th ZOOM  United Porphyrias Association
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