In a recent statement, the U.S. Food and Drug Administration (FDA) has authorized regular approval to rucaparib (Rubraca) for adults with metastatic castration-resistant prostate cancer
A new oral medication has demonstrated remarkable effectiveness in treating hereditary angioedema (HAE) attacks, offering patients significantly faster symptom relief compared to existing options. According
Incyte has announced encouraging top-line findings from its pivotal Phase III frontMIND trial, evaluating tafasitamab (marketed as Monjuvi/Minjuvi) in combination with lenalidomide and the standard
Researchers at Oregon Health & Science University have made a significant breakthrough in the fight against acute myeloid leukaemia (AML), discovering that combining a standard
I’ve always known that I wanted to help people. Growing up as the son of a veterinarian and a high school teacher who later became
Iowa University researchers at its Children’s Hospital led the effort that found a new target. According to the Iowa Carver College of Medicine, to date,
Editor’s Note: The following study results were first published in Nephrology Dialysis Transplantation (December 16, 2025) and later shared in the Oxford Academic. The original
Otsuka has claimed a significant victory in the increasingly competitive immunoglobulin A nephropathy (IgAN) field with FDA accelerated approval of Voyxact, the first-in-class anti-APRIL biologic
As reported on FiercePharma, Johnson & Johnson has secured a significant milestone in prostate cancer treatment with the FDA’s approval of Akeega for patients with
A groundbreaking study from Massachusetts General Hospital reveals that artificial intelligence is catching breast cancers that skilled radiologists initially overlook. As reported by Business Wire,
There’s a lot to consider when you’re facing tumor removal surgery. Think about mandible or jaw surgery, for example. Your face is part of every
As reported on PharmaBiz, GENESIS Pharma has announced an exclusive agreement with Otsuka Pharmaceutical Europe Ltd. (OPEL) to distribute and commercialize donidalorsen across 14 Central
As reported on PharmaBiz, Renalys Pharma has reported encouraging topline data from its Phase III trial evaluating sparsentan (RE-021), an oral dual endothelin and angiotensin
Gilead Sciences announced positive topline results from the Phase 3 ARTISTRY-2 trial on December 15, 2025 and reported by Drugs.com, marking a significant advancement in
As reported on BioPharmaDive, the U.S. Food and Drug Administration (FDA) has granted early approval for a new frontline treatment option for HER2-positive metastatic breast
A groundbreaking study published in Neurology and reported by Drugs.com reveals that adults with type 2 diabetes who use glucagon-like peptide-1 receptor agonists (GLP-1 RAs),
I’m Nella, and this is part of my journey with Metabolic dysfunction-associated steatohepatitis (MASH). I was diagnosed with MASH in early 2024, after being
When we hear the word diet, most of us automatically think of food. But what about our thoughts? Let’s look at them in terms of
7 days until Rare Disease Month begins!
In just one week, we’ll join millions of patients, families, caregivers, and advocates who navigate the rare disease journey every day. Your story matters.
Patient Worthy is inviting the rare disease community to take part in our Rare Disease Month initiative by sharing your experience—whether it’s a photo that shows what rare means to you or a short video about your journey. Simply fill out the form below to get started, and we’ll follow up with more details!
bit.ly/4qzof8f
✨ 1 in 10 people lives with a rare disease.
✨ There are more than 7,000 rare conditions.
✨ Most still have no approved treatment.
As we count down, we’re taking time to uplift voices, spark conversations, and shine a light on experiences that too often go unseen.
Stay tuned throughout the week as we share stories, highlight advocacy organizations, and explore how each of us can help build a more informed, supportive, and inclusive world for those living with rare conditions.
#RareDiseaseMonth #ShareYourStory #ShareYourStripes #RareDisease #RareDiseaseWarriors #WeCareAboutRare #ShowYourStripes #RareButNotAlone #PatientWorthy
🌍 World Leprosy Day: Raising Awareness, Ending Stigma
World Leprosy Day is observed every year on the last Sunday of January, a tradition begun in 1954 to honor the compassion and advocacy of Mahatma Gandhi.
Each year, 200,000 people are diagnosed, and millions more live with the damaging consequences of delayed treatment. World Leprosy Day provides an important opportunity to:
✨ Celebrate the lives of those affected
✨ Raise awareness of the signs and symptoms
✨ Challenge and reduce stigma
✨ Promote early diagnosis and treatment
✨ Support efforts to end leprosy transmission
Leprosy is fully curable with early antibiotic treatment, yet stigma often prevents people from seeking help, leading to avoidable complications and ongoing transmission.
#WorldLeprosyDay #EndStigma #LeprosyAwareness #GlobalHealth #PatientWorthy
ADHD management isn't one-size-fits-all, it's a mix of medication, therapy, lifestyle adjustments, and support tailored to you. Finding what works takes time, but research shows combining approaches works best. You've got this! #adhd #ADHDTreatment #mentalhealthawareness #ADHDManagement #PatientWorthy
#shareyourstory with us here: bit.ly/4dV7gru
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
