As reported on FiercePharma, China-based biotech Dizal Pharmaceutical has reported a pivotal phase 3 success for its oral EGFR inhibitor Zegfrovy (sunvozertinib), marking a potential
Editor’s Note: The following article was originally written by Kelly Curtin-Hallinan, and shared with us by our friends at Elephants & Tea. This past St.
Arexvy Now Available for Adults Aged 18–49 with Certain Health Conditions The U.S. Food and Drug Administration has granted approval to expand GSK’s Arexvy respiratory
As reported on PharmaBiz, the US Food and Drug Administration has broadened the approved use of GSK’s respiratory syncytial virus (RSV) vaccine, Arexvy, to include
Editor’s Note: The following in from author Stephen Policoff, whose book A Ribbon for Your Hair is out today! Introduction When Stephen Policoff’s adopted daughter
A New Solution to Address Critical Gaps in Glioma Diagnosis and Management Telix Pharmaceuticals, a biopharmaceutical company specializing in therapeutic and diagnostic radiopharmaceuticals, has taken
As reported on Healio, a novel biologic targeting two key angiogenic pathways has shown encouraging early results for the treatment of wet age-related macular degeneration
Editor’s Note: This story is a continuation of Jenny Decker’s global sailing voyage. To see the original article, please click here. Many of our Patient
AstraZeneca has received European Commission approval for Imfinzi (durvalumab) in combination with FLOT chemotherapy, a landmark achievement representing the first immunotherapy-based regimen to demonstrate survival
People with rare and chronic disease often suffer from long term pain. New ways to alleviate this pain are needed. According to a press release
“Do not go gentle into that good night. Rage, rage against the dying of the light.” –Dylan Thomas One may have thought, after six months
In a recent press release, Structure Therapeutics has reported encouraging topline results from its Phase 2 ACCESS clinical program evaluating aleniglipron, an investigational once-daily oral
As reported on Inside Precision Medicine, scientists in Germany have made an exciting discovery that could help children with a very rare and serious illness
The biotechnology sector witnessed a striking demonstration of expedited drug development this week, with Boehringer Ingelheim receiving FDA approval for an innovative lung cancer therapy
As reported by Pharma Times, Elevara Medicines has initiated a phase 2b clinical study evaluating ELV001, an investigational oral CDK4/6 inhibitor, in people with rheumatoid
Pictured above: Giuliana Noratto, Ph.D., (left) and Lauren Stranahan, Ph.D., led research showing that compounds in dark sweet cherries may help slow the growth and
Daiichi Sankyo has taken a significant step toward expanding treatment options in Japan by submitting regulatory approval for Enhertu, an advanced cancer-fighting drug designed to
As reported by FiercePharma, the U.S. Food and Drug Administration has approved the first fully independent generic version of GlaxoSmithKline’s widely used asthma inhaler, Flovent,
It starts with awareness and leads to action. 💙
On National Youth HIV/AIDS Awareness Day, we’re sharing trusted resources to help young people protect their health and their future.
📍 Learn the facts
📍 Get tested
📍 Find prevention tools
Learn the Facts (Youth‑Focused)
• National Youth HIV/AIDS Awareness Day – CDC
👉 www.cdc.gov/healthy-youth/nyhaad/index.html [cdc.gov] • HIV & Youth Basics – HIV.gov
👉 www.hiv.gov/events/awareness-days/youth [hiv.gov]
Get Tested
• HIV Testing & Services Locator
👉 gettested.cdc.gov/ [hiv.gov]
![It starts with awareness and leads to action. 💙
On National Youth HIV/AIDS Awareness Day, we’re sharing trusted resources to help young people protect their health and their future.
📍 Learn the facts
📍 Get tested
📍 Find prevention tools
Learn the Facts (Youth‑Focused)
• National Youth HIV/AIDS Awareness Day – CDC
👉 https://www.cdc.gov/healthy-youth/nyhaad/index.html [cdc.gov]
• HIV & Youth Basics – HIV.gov
👉 https://www.hiv.gov/events/awareness-days/youth [hiv.gov]
Get Tested
• HIV Testing & Services Locator
👉 https://gettested.cdc.gov/ [hiv.gov]](https://patientworthy.com/wp-content/plugins/custom-facebook-feed-pro/assets/img/placeholder.png)
A Breakthrough for the Invisible Affliction: FDA Approves First-Ever Treatment for Cholestatic Itch in Liver Disease bit.ly/3O9dgEH Read now at PatientWorthy.com
#PatientWorthy #cholestaticitch #PrimaryBiliaryCholangitis
Receiving a diagnosis can be a complicated moment. For many people in rare disease and chronic illness communities, it comes after a long period of uncertainty — trying to describe symptoms, searching for answers, and often feeling like the pieces don’t quite fit together yet.
When there is finally a name for what’s been happening, it can bring a sense of validation and context. Experiences that once felt confusing or difficult to explain may start to make more sense, and people are often able to begin learning more about the condition and how it affects their health.
While a diagnosis doesn’t change everything overnight, it can mark the start of a new chapter — one where there is more understanding, more information, and a clearer place to begin moving forward.
If you’re comfortable sharing, what did receiving a diagnosis mean for you?
#RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #PatientWorthy
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