Rare disease patients throughout India have expressed their disappointment and anger towards the country’s new policy centered on rare conditions. One of their main concerns
The month of April is recognized as Sjögren’s Awareness Month, a time for spreading awareness about the autoimmune disease Sjögren’s syndrome in the medical community
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
In life, we are faced with a variety of obstacles. But it is the choices we make in facing these obstacles which define ourselves and
At the start of April 2021, the Food and Drug Administration (FDA) approved Regeneron Pharmaceutical’s Praluent (alirocumab), a treatment for patients aged 18+ with
The European Commission (EC) has granted the Orphan designation to Passage Bio for their Krabbe disease treatment, PBKR03. This adds another designation to the medication’s
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