Next- Generation Cystinosis

We are a nonprofit volunteer-run organization run by and for adults 18 years and older affected by cystinosis. We provide emotional and mental support and medically accurate sexual and reproductive health education and resources specifically for adults. Our mission is to create safe spaces for adults 18 years and older affected by cystinosis to engage in open and honest dialogue about the plethora of issues that affect us.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With Next-Gen Cystinosis

Patient Worthy Posts on Cystinosis

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