Next- Generation Cystinosis
We are a nonprofit volunteer-run organization run by and for adults 18 years and older affected by cystinosis. We provide emotional and mental support and medically accurate sexual and reproductive health education and resources specifically for adults. Our mission is to create safe spaces for adults 18 years and older affected by cystinosis to engage in open and honest dialogue about the plethora of issues that affect us.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With Next-Gen Cystinosis
Patient Worthy Posts on Cystinosis
You know those commercials, “What would you do for a Klondike bar?” Think about that, but instead of getting ice cream you get to play baseball.
Now in its fifth year, a team of highly motivated cyclists from Sandpoint has once again pedaled some 3,000 arduous miles across the United States,
Tahnie was 16 months old when she was diagnosed with the rare disease cystinosis. Her parents were told she would most likely not live past
For a “normal” teenage girl, life’s biggest problems usually include not being able to decide which outfit to wear to school, which boy to say
For a disease that has so little attention drawn to it, there’s quite a few people that want to bring it to the forefront in