The Cystinosis Research Network

The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about Cystinosis. They are a private, nonprofit 501(c)(3) corporation, whose vision is the acceleration of the discovery of a cure, development of improved treatments and enhancement of quality of life for those with Cystinosis.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With The Cystinosis Research Network

Patient Worthy Posts on Cystinosis

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