The Cystinosis Research Network
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about Cystinosis. They are a private, nonprofit 501(c)(3) corporation, whose vision is the acceleration of the discovery of a cure, development of improved treatments and enhancement of quality of life for those with Cystinosis.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With The Cystinosis Research Network
Patient Worthy Posts on Cystinosis
You know those commercials, “What would you do for a Klondike bar?” Think about that, but instead of getting ice cream you get to play baseball.
Now in its fifth year, a team of highly motivated cyclists from Sandpoint has once again pedaled some 3,000 arduous miles across the United States,
Tahnie was 16 months old when she was diagnosed with the rare disease cystinosis. Her parents were told she would most likely not live past
For a “normal” teenage girl, life’s biggest problems usually include not being able to decide which outfit to wear to school, which boy to say
For a disease that has so little attention drawn to it, there’s quite a few people that want to bring it to the forefront in