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book review

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A Review of ‘Rock Bottom: Gathering Gratitude for God in the Difficulties of Life’

A Review of ‘Rock Bottom: Gathering Gratitude for God in the Difficulties of Life’

  • Post author:Kathy Devanny
  • Post published:April 23, 2025
  • Post category:Mucolipidoses Type II

"Rock Bottom" is the story of a family who’s second born child, a son named Ashton, was born with Mucolipidosis Type II, a disease so rare and so frequently mistaken…

Continue Reading A Review of ‘Rock Bottom: Gathering Gratitude for God in the Difficulties of Life’
Living With Rare Disease in Trump’s America
Source: Pixabay

Living With Rare Disease in Trump’s America

  • Post author:Andres Rovira
  • Post published:November 2, 2017
  • Post category:Moebius Syndrome/Rare Disease

A new book was just released called “Nasty Women: Feminism, Resistance, and Revolution in Trump’s America,” a collection of essay's written by empowered women speaking out against life in Trumpland.…

Continue Reading Living With Rare Disease in Trump’s America
One Great Author is Huntington’s New Champion
https://pixabay.com/en/book-heart-love-grains-sand-sea-2115176/

One Great Author is Huntington’s New Champion

  • Post author:PW Blogger
  • Post published:October 12, 2016
  • Post category:Huntington's disease/Rare Disease

For me, a good book has the ability to transport me to another place. I often find myself escaping within the pages to another world created by the author. Through…

Continue Reading One Great Author is Huntington’s New Champion
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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