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How Cristiano Ronaldo’s Discarded Armband Became a Lifesaver for a Child With a Rare Disease

How Cristiano Ronaldo’s Discarded Armband Became a Lifesaver for a Child With a Rare Disease

  • Post author:Bree Clare
  • Post published:June 20, 2025
  • Post category:Spinal Muscular Atrophy

A remarkable story shared by Sportskeeda illustrates how a moment of frustration on the football field turned into hope for a family in need. In March 2021, after a controversial…

Continue Reading How Cristiano Ronaldo’s Discarded Armband Became a Lifesaver for a Child With a Rare Disease
Eddie Vedder Shines Light on Rare Disease Advocacy in “Matter of Time” Documentary

Eddie Vedder Shines Light on Rare Disease Advocacy in “Matter of Time” Documentary

  • Post author:Bree Clare
  • Post published:June 11, 2025
  • Post category:Rare Disease

Pearl Jam front-man Eddie Vedder takes center stage in the new documentary “Matter of Time,” offering fans and viewers a rare, intimate glimpse into his life as both an artist…

Continue Reading Eddie Vedder Shines Light on Rare Disease Advocacy in “Matter of Time” Documentary
Sia Speaks Out About Her Struggles With Ehlers Danlos Syndrome
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Sia Speaks Out About Her Struggles With Ehlers Danlos Syndrome

  • Post author:Sunniva Bean
  • Post published:October 10, 2019
  • Post category:Rare Disease

On Friday, internationally renowned singer-songwriter Sia tweeted, "Hey, I'm suffering with chronic pain, a neurological disease, ehlers danlos and I just wanted to say to those of you suffering from…

Continue Reading Sia Speaks Out About Her Struggles With Ehlers Danlos Syndrome
Actress Selma Blair Announces her Multiple Sclerosis Diagnosis 

Actress Selma Blair Announces her Multiple Sclerosis Diagnosis 

  • Post author:Jean Martell
  • Post published:October 22, 2018
  • Post category:Multiple Sclerosis

You may know her from movies like Legally Blonde, Cruel Intentions, and Hellboy - but now Hollywood star Selma Blair has a new role she's tackling: multiple sclerosis advocate. Just…

Continue Reading Actress Selma Blair Announces her Multiple Sclerosis Diagnosis 
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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