This charity has been set up to offer research based and lived experience, advice and support. Aims: To support any individual of any age with HFI, particularly parents of babies…
Editor's Note: This article was translated into English from Spanish; there may be inconsistencies or minor errors. Sports and the fight against Dravet syndrome will once again go hand in…
From Patient Worthy's friends at the Platelet Disorder Support Association comes a post about a patient's experience with Immune Thrombocytopenic Purpura (ITP) and a walk to raise awareness about the…
In 2015, Luke and Hayleigh Tate welcomed their daughter Maisy-Leigh into the world. However, following an emergency C-section, Maisy-Leigh was taken into critical care. The doctors noticed a number of…
On April 2nd, NFL scouts made their way to Eugene, Oregon to check out some of college football's most talented players. They watched as athletes completed the vertical jump, 40-yard…
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