Data has recently been announced from a study investigating the efficacy of a new therapy called Alpelisib, for the treatment of PIK3CA-related overgrowth spectrum (PROS). The study was called EPIK-P1.…
August 3rd is CLOVES Syndrome Awareness Day! The CLOVES Syndrome Community (CSC) is an organization that "supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome" and…
The 2019 CLOVES Family Conference Boston, Massachusetts Are you a CLOVES syndrome patient? Well don’t miss this important patient event. At this conference, CLOVES syndrome patients and their families will…
A simple facebook post has led to a life changing event for a young boy with CLOVES Syndrome. Keep reading to find out how, or follow the original story here.…
Fourteen years ago, Sabrina "Bria" Baumann's mother, Sophia, saw a mass growing in a sonogram. Something was wrong. Whatever was growing was on her chest and her neck, and the…
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