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Cystinosis- ocular nonnephropathic

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Answers About Patient Assistance with Rare Medication

Answers About Patient Assistance with Rare Medication

  • Post author:Rebekah Palmer
  • Post published:March 13, 2019
  • Post category:Cystinosis/Cystinosis- ocular nonnephropathic/Nephropathic Cystinosis

A few months ago, Patientworthy editor Kathy Devanny asked me some important questions about the assistance I receive from Patient Access Managers as a person living with the rare disease…

Continue Reading Answers About Patient Assistance with Rare Medication
This Dedicated Scientist Left a Legacy to Fight Cystinosis

This Dedicated Scientist Left a Legacy to Fight Cystinosis

  • Post author:Rose Duesterwald
  • Post published:March 12, 2019
  • Post category:Cystinosis/Cystinosis- ocular nonnephropathic/Nephropathic Cystinosis

According to a recent article in the Sunderland Vibe, the MRC Developmental Pathway Funding Scheme (MRC) was created to carry out the work of Professor Roz Anderson, who recently died of…

Continue Reading This Dedicated Scientist Left a Legacy to Fight Cystinosis
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