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This Girl Got a Kidney for Her Birthday, And It’s Awesome!

This Girl Got a Kidney for Her Birthday, And It’s Awesome!

  • Post author:Patient Worthy Contributor
  • Post published:August 6, 2015
  • Post category:Cystinosis/Rare Disease

For a "normal" teenage girl, life's biggest problems usually include not being able to decide which outfit to wear to school, which boy to say yes to for the upcoming…

Continue Reading This Girl Got a Kidney for Her Birthday, And It’s Awesome!

Man Embarks On 1800 km Bike Ride, All for this Little Girl

  • Post author:Patient Worthy Contributor
  • Post published:August 4, 2015
  • Post category:Cystinosis/Rare Disease

Dan Giancola is about to take the ride of this life. Literally. The St. Catharines Standard details his mission to raise more than $100,000 for Abbi, a nine-year-old girl fighting…

Continue Reading Man Embarks On 1800 km Bike Ride, All for this Little Girl

Cops Raid These Kids’ Lemonade Stand, Ends Better Than You Think

  • Post author:Patient Worthy Contributor
  • Post published:July 28, 2015
  • Post category:Cystinosis/Rare Disease

Jake Krahe, a youngster from Montville Township, Ohio,  has been living with a rare disease since he was 19 months old 19 Action News reports. The specific diagnosis is cystinosis, a…

Continue Reading Cops Raid These Kids’ Lemonade Stand, Ends Better Than You Think
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