The Sun Sucks, But You Do Not
My whole life growing up, there was this specific buzzing sound that would come alive on the sunniest of days. I’ve been told over the years it’s because of everything…
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The Sun Sucks, But You Do Not
FDA Accelerates PORT-77 for Rare Sunlight-Sensitive Disorders
Portal Therapeutics, in partnership with GondolaBio, has achieved a milestone with the FDA granting orphan drug and fast track status to its oral therapy candidate, PORT-77. This investigational drug, according…
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FDA Accelerates PORT-77 for Rare Sunlight-Sensitive Disorders
The FDA Has Just Approved the Very First Therapy for Erythropoietic Protoporphyria
EPP Erythropoietic protoporphyria (EPP) is a rare disease that causes extreme light sensitivity. This sensitivity is so extreme that being outside is extremely difficult for patients and many only come…
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The FDA Has Just Approved the Very First Therapy for Erythropoietic Protoporphyria
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Fun in the Sun? How One Little Girl Beat the Summer Heat after an EPP Diagnosis
The American Porphyria Foundation has a section on its website dedicated to telling patient stories. It gives voice to people's experiences and allows them to connect with others and share…
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Fun in the Sun? How One Little Girl Beat the Summer Heat after an EPP Diagnosis
