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The Rare 2030 Action Campaign For A Better Rare Future

The Rare 2030 Action Campaign For A Better Rare Future

  • Post author:Sunniva Bean
  • Post published:June 24, 2021
  • Post category:Rare Disease

As reported in Charcot-Marie Tooth News; this year, Eurordis has kicked off a campaign to make sure those with rare diseases don’t get left behind in the coming century. Small…

Continue Reading The Rare 2030 Action Campaign For A Better Rare Future
Survey Indicates Needs of Rare Disease Patients During COVID-19
source: pixabay.com

Survey Indicates Needs of Rare Disease Patients During COVID-19

  • Post author:Trudy Horsting
  • Post published:January 11, 2021
  • Post category:COVID-19/Rare Disease

Eurordis The European Organization for Rare Diseases (Eurordis) is a nonprofit organization which organizes over 930 rare disease groups into one alliance. Groups have joined the network from 73 different countries.…

Continue Reading Survey Indicates Needs of Rare Disease Patients During COVID-19
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