CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families November 7th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
The PAH Today National Broadcast "The Pathways to Treatment" Saturday, November 7th, 2020 This online webinar event will be a critical chance for pulmonary arterial hypertension (PAH) caregivers and patients…
The Ehlers Danlos Society's European Learning Conference November 7-8, 2020 This event will feature presentations from world-renowned experts on Ehlers-Danlos syndrome and related conditions, including the latest in research and…
The MS MindShift initiative offers free educational online events that focus on helping people who live with multiple sclerosis (MS) better understand the critical role that healthy choices can have…
Unmask HPP Webinar Educational Event November 5th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
Learn About Primary Biliary Cholangitis Join us for an online event about primary biliary cholangitis (PBC). Don't miss out on a live Q&A session with a Nurse Educator* and an…
The MS MindShift initiative offers free educational online events that focus on helping people who live with multiple sclerosis (MS) better understand the critical role that healthy choices can have…
Managing Your PNH Connect. Learn. Take Action. Live Webinar Thursday, October 29, 2020 Alexion invites patients, families, and caregivers living with paroxysmal nocturnal hemoglobinuria (PNH) to an educational program for…
Patient-Focused Drug Development Meeting with the FDA Organized by the National Organization for Rare Disorders (NORD), this meeting will be a critical opportunity for patients to communicate directly with regulators…
The 14th International VHL Medical/Research Symposium October 29-31, 2020 Amsterdam, Netherlands This event is geared towards the medical and research community. The conference will feature scientific research presentations on findings…
Unmask HPP Webinar Educational Event October 28th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 24th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
The PAH Today National Broadcast "How Decisions Today Can Shape The Future" Saturday, October 24th, 2020 This online webinar event will be a critical chance for pulmonary arterial hypertension (PAH)…
Unmask HPP Webinar Educational Event October 22nd, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
The MS MindShift initiative offers free educational online events that focus on helping people who live with multiple sclerosis (MS) better understand the critical role that healthy choices can have…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 17th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
The PAH Today National Broadcast Saturday, October 17th, 2020 This online webinar event will be a critical chance for pulmonary arterial hypertension (PAH) caregivers and patients from around the country…
2020 IWMF Global Education Webinar IgM MGUS & Smoldering WM: How Understanding Precursors Can Help in Finding a Cure with Dr. Irene Ghobrial The International Waldenstrom's Macroglobulinemia Foundation (IWMF) encourages…
Unmask HPP Webinar Educational Event October 13th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option.…
The A Million Dreams Gala A Virtual Event This virtual gala is a valuable fundraiser event for KrabbeConnect, a nonprofit organization dedicated to supporting the Krabbe disease patient community and finding a…
The MS MindShift initiative offers free educational online events that focus on helping people who live with multiple sclerosis (MS) better understand the critical role that healthy choices can have…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 3rd, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
Glut1 Virtual Community Gatherings: Australia & New Zealand September 27th, 2020 Patient Voice in Research - input discussions for survey development The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic…
Glut1 Virtual Community Gatherings: Children with Glut1 Deficiency Glut1 Pals September 26th, 2020 The Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission…
Glut1 Virtual Community Gatherings: Glut1 Deficiency Parents Patient Voice in Research - input for survey development to capture patient and family experiences and identify needs September 26th, 2020 The Glut1…
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