Family Conference 2018 "Together Even Stronger" This conference will be open to patients affected by myotubular and centronuclear myopathies, their families, and caregivers. The event will feature workshops and speakers…
The 2018 Aicardi Syndrome Family Conference At this event, attendees will be able to meet other families that have been affected by Aicardi syndrome. In addition, the conference will be…
#NOAHCon2018 The event will be an opportunity for members of the albinism community to come together, share stories, and build community. Participants will be able to learn the latest about…
The 24th Annual Convention This conference is available to patients and their families that are affected by septo-optic dysplasia and other disorders that impact a child's growth and development. It…
This conference is available to children and adults affected by Marfan syndrome and their families. It will serve as an opportunity to meet other members of the Marfan syndrome…
The conference will take place is Santa Clara, California July 12th-15th. To register, please sign-up for emails by visiting the website below.
The 16th NFXF International Fragile X Conference This event will cover all fragile X disorders and is the largest fragile X event in the world. Caregivers, families, patients, and medical…
The 2018 National Convention At this event, Williams syndrome patients and their families will have a chance to learn the latest in research, treatment, and diagnostics from widely reputed Williams…
"Bridges to Inspiration" At the 2018 conference, families and patients affected by ectrodactyly-ectodermal dysplasia-cleft syndrome and other ectodermal dysplasias will be able to build community with each other, network, and…
LPA National Conference Orlando 2018 This event will be a great opportunity for those affected by dwarfism and diastrophic dysplasia to build community and have fun with one another. This…
The 16th Annual Patient Education Conference This event is for patients and families that are affected by any eosinophilic disorders, such as eosinophilic gastroenteritis, Eisenmenger syndrome, eosinophilic esophagitis, and eosinophilic…
2018 FOD/OAA International Metabolic Conference Families dealing with fatty oxidation disorders, methymalonic acidemia, and organic acidemias will feel right at home at this event. At this conference, patient families will…
"Learn, Network, and Bond!" This event will be an opportunity for Sotos syndrome patients and families to come together for a weekend of support, community building, and education. Additionally,…
The 2019 NUCDF Annual Family Conference This year's conference will be a unique opportunity for researchers, patients, families, and medical experts to come together and spread support and knowledge about…
"Advance the Dream" This conference will be a chance for PKU patients and their families to learn the latest about PKU research and treatment from disease experts. The event will…
The 13th Annual Arthrogryposis Multiplex Congenita Conference This conference will be a chance for families affected by AMC to converge and share stories and support. In addition medical professionals and experts…
The Gala of Dreams "The Dawn of a Dream" This is the first gala event hosted by the Alagille Syndrome Alliance (ALGSA). Open to all members of the Alagille syndrome…
The 4th International Family Conference "UNITY FOR A CURE" This conference will be an opportunity for medical professionals, caregivers, and patient families to come together collaboratively to learn about the…
27th Annual Alpha-1 National Education Conference This event will allow Alpha-1 and COPD patient families to learn more about their diseases and stay informed about the latest in research and…
The 13th International Adult and Family Conference This conference will be an opportunity for the cyclic vomiting syndrome patient community to learn about a variety of subjects related to this…
20th Biennial FIRST National Conference "Tune in Together" Join the Foundation for Ichthyosis and Related Skin Types (FIRST) at their biennial national conference. People with ichthyosis bullosa of siemens, their…
"PHinding Your Hope" This is the largest gathering of the PH disease community in the world. This will be an opportunity for empowerment for patients with PH. Participants will learn…
The 2018 National Conference and Fundraiser This conference will be a change for patients and their families to meet one another to build community and support. In addition, disease experts…
A patient and family conference for patients and families affected by juvenile arthritis. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing juvenile…
Biennial Conference This conference will be a chance for families affected by Cornelia de Lange syndrome to interact one on one with medical experts, build community with each other, and…
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