NNPDF's 26th Annual Family Conference This event is geared towards the families affected by Niemann-Pick disease. The conference will be a unique and exciting opportunity for attendees to learn the…
A patient and family conference for patients and families affected by juvenile arthritis. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing juvenile…
The 2018 MPS Symposium August 2-4, 2018 People who attend the symposium can expect to learn about that latest in MPS research as well as workshops about best practices and…
The 2018 BOS Family Meet-Up This conference will be an event of support and celebration for BOS patients and their families. Attendees will be able to network, share stories, and…
The 2018 Scleroderma Foundation National Patient Education Conference The event will be an opportunity for scleroderma patients and their families to come together for a time of solidarity, community building,…
The 2018 Scleroderma Foundation National Patient Education Conference The event will be an opportunity for systemic scleroderma patients and their families to come together for a time of solidarity, community…
The 5P Minus Society Conference of Champions The conference will an opportunity for families affected by cri du chat syndrome (5P minus) to engage and learn from one another. This…
2018 World TSC Conference This event will be an opportunity for tuberous sclerosis patients and their families to network with one another. Participants will also be able to learn about…
ASAP Chiari & Syringomyelia Conference This event will be an opportunity for chiari and syringomyelia patients and their families to network with one another. Participants will also be able to…
This event will be an opportunity for epidermyolsis bullosa patients and their families to network with one another. Participants will also be able to learn about the latest in epidermyolsis…
BWS Family Conference 2018 This event will be a chance for families affected by BWS to come together, build community, share stories, and network with one another. In addition, the…
The 13th Moebius Syndrome Foundation Conference This event will be an opportunity for patients and families to learn the latest info from Moebius syndrome experts. Families will learn about a…
The 10th International SMS Conference "Honoring the Past, Treasuring the Past, Shaping the Future" The event will be an opportunity for SMS patients and their families to share their experiences…
Put Europe on your calendar for 2018! Usher patients, researchers and family members welcome to the two-day Symposium in July. For more information, contact [email protected]
2018 Biennial DSF Family and Professional Conference Don't miss this three day conference that will allow caregivers, medical, professionals, and families to converge, network, and learn. Dravet syndrome experts will…
The 2018 Noonan Syndrome Foundation Conference The event will be an opportunity for Noonan syndrome patients and their families to share their experiences with one another and build community. This…
The 2018 BDSRA Family Conference "Walk the Line For a Cure" This event is an invitation for the Batten disease patient community, including advocates, families, and patients themselves, to converge…
The 32nd Annual Medical & Family Conference This conference will be a chance for the trisomy 18 patient community to come together, to share stories, spread support, and build community.…
Freedom & Hope This event will be a chance for patients and families affected by Krabbe disease and other leukodystrophies to come together for to build community, spread hope, and…
THE 9TH INTERNATIONAL SCIENTIFIC, MEDICAL & FAMILY CONFERENCE "Power Up!" This event will be a convergence of health providers, researchers, and industry leadership to present the latest research and treatments…
The 11th Biennial International 22q11.2 Conference This event is open to families affected by DiGeorge syndrome (22q11.2) and other deletion duplication syndromes. Participants will learn the latest information about these…
2018 OIF National Conference This conference is available to children and adults affected by osteogenesis imperfecta and their families. It will serve as an opportunity to meet other members of…
Annual ITP Conference This event will be an opportunity for ITP patients and their families to learn the latest info on ITP research and treatment from medical experts. In addition,…
2018 Neutropenia Family Conference The Neutropenia Family Conference will be a convergence of health providers, researchers, and industry leadership to present the latest research and treatments in the field of…
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