Tags Posts tagged with "events"

events

The Mastocytosis Society presents a support group meeting open to the public in Kansas City, MO. Be sure to RSVP to Cheri Smith: scoach62@hotmail.com

Gordon Research Conference hosts the Cellular and Molecular Signaling of FGFs: From Bench to Bedside. The conference will highlight FGF biology research heard from...

Alkaptonuria Society, AKU, hots their Second International Patient Workshop in Liverpool, England. This event is for patients, caregivers and friends to learn more about Alkaptonuria. To...

The Mastocytosis Society presents a support group meeting open to the public in Southington, Ct. Be sure to RSVP to Bonnie Sica: bsica7@gmail.com

The Mastocytosis Society presents a support group meeting open to the public in Oklahoma City, OK. Dr. Miner will be speaking. Be sure to RSVP...

The Alabama Rare Disease community has come together to host a special week in honor of the upcoming date February 28th, 2018, which is...

The only conference in the Europe that provides guidance around involving patients through the process of clinical research. Industry Fees: $1,395 or ~ £1175 rates available...

CISCRP, The Center For Information & Study On Clinical Research Participation, is a unique and one-of-a-kind non-profit focused on clinical trial education. CISCRP is...

The Mastocytosis Society is an amazing organization that brings focus to patients with mastocytosis and mast cell activation diseases. They hope to bring awareness, as...

Whether you’re dealing with chronic myelogenous leukemia (CML), chondrosarcoma, neuroblastoma, or the host of other pediatric cancer diagnoses, it’s the actual diagnosis that can...

You can give without loving, but you cannot love without giving. -Amy Carmichael Don't Forget-- It's also National Donor Day. Give one of the ultimate gifts...

The MDS Foundation is hosting a free luncheon this November! It will be held at the Craftbar Restaurant at 900 Broadway (between 19th & 20th...

Happy August Patient Worthians! We hope you're able to keep cool in this current heat wave. This month is Autoinflammatory Disease Awareness Month and we want...

Whether you’ve just been diagnosed with IPF, or you’ve been living with the diagnosis for a while now, there’s one website location that you...

Channel your inner Mickey and put those big ears to the ground! What’s that you hear? Why, it’s the sound of a whole lotta...

Have a rare disease? Have you ever been to a national patient conference? These are invaluable opportunities to connect with others who share your challenges...

We all know the saying: April showers bring May flowers. But did you know that April sharing brings May caring? May is Vasculitis Awareness Month, and...

As my colleague James Earnest Cassady covered earlier this week, Wake Up Narcolepsy, or WUN, has been raising funds for narcolepsy research in a pretty...

Wake up, Narcolepsy! When runners leave the starting line in Hopkinton, MA, for this year's Boston Marathon, the pack will contain some extra motivated individuals. TeamWUN...

Come one, come all! Well, mainly those who you live with narcolepsy... The annual Narcolepsy Network (NN) Conference is in the works, and this year, Judith Owens, MD,...

What's the best way to raise money and awareness when you have a rare disease? Organize or participate in an event, duh. That's exactly what Dwayne...

What does roasted corn have to do with cystinosis? If you're scratching your head, don't worry: At first, we were too. But in Buffalo Grove, IL, an annual...