Brewery Night Hosted by the Young Leaders Board April 15, 2024 Bricksworth Beer Co, Minneapolis, MN Learn more about lung cancer by visiting A Breath of Hope’s Young Leaders Board…
The Role of AI in Predicting Stem Cell Donor Availability Webinar January 31, 2024 The success of unrelated donor stem cell transplants depends on not only finding genetically matched donors…
Classical HCU Patient, Parent, Caregiver Online Meetup September 17, 2023 at 4 PM We will start the meeting with introductions and conversation together, then move into breakouts. There will be…
Adults with CF Who Received a Late Diagnosis Online Support Group September 6, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis.…
Uplifting Athletes 10,000 Mile Challenge August 10-19, 2023 Are you an avid runner, swimmer, or cyclist? Do you roll on wheels of any kind or are a casual walker? Whether…
Web-Based Living with Urea Cycle Disorder Support Group A supportive, web-based peer support group for those living with urea cycle disorder. facilitated by Annie Moon, LMFT 3rd Wednesday of every…
2023 EDS ECHO Summit: Hypermobility Spectrum Disorder (HSD) Virtual Conference April 1-2, 2023 The EDS ECHO Summit Series event will be a two-day virtual event that will take place on…
The National Organization for Rare Disorders (NORD) is hosting its 2019 NORD Rare Diseases & Orphan Products Breakthrough Summit on October 21-22 in Washington, D.C. NORD is a great organization and…
Speakers: Carla Duff, ARNP Annette Gregory To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This…
Speakers: Laura Rohe RN, BSN, AE-C Danielle Ball To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
The 2019 Patient and Family Conference Albuquerque, NM This patient conference is open to all patients with aplastic anemia, myelodysplastic syndromes, and related diseases such as various leukemias and paroxysmal…
Speakers: William Blouin, MSN, ARNP, CPNP Appolos Laurore To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: Estelle Helms Laura Rohe RN, BSN, AE-C To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: William Blouin, MSN, ARNP, CPNP Elizabeth Thirtyacre To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN Elizabeth Thirtyacre To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: Danielle Ball Laura Rohe RN, BSN, AE-C To register for this live event, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra.…
Speakers: Laura Rohe, RN, BSN, AE-C To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin…
Speakers: Elizabeth Thirtyacre Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with…
The Mastocytosis Society presents a support group meeting open to the public in Kansas City, MO. Be sure to RSVP to Cheri Smith: [email protected]
Gordon Research Conference hosts the Cellular and Molecular Signaling of FGFs: From Bench to Bedside. The conference will highlight FGF biology research heard from academic scientists, clinicians and industry colleagues.…
Alkaptonuria Society, AKU, hots their Second International Patient Workshop in Liverpool, England. This event is for patients, caregivers and friends to learn more about Alkaptonuria. To attend the workshop, please email:…
The Mastocytosis Society presents a support group meeting open to the public in Southington, Ct. Be sure to RSVP to Bonnie Sica: [email protected]
The Mastocytosis Society presents a support group meeting open to the public in Oklahoma City, OK. Dr. Miner will be speaking. Be sure to RSVP to Cheri Smith: [email protected]
The Alabama Rare Disease community has come together to host a special week in honor of the upcoming date February 28th, 2018, which is now the official International Rare Disease…
The only conference in the Europe that provides guidance around involving patients through the process of clinical research. Industry Fees: $1,395 or ~ £1175 rates available until November 24, 2017…
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