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IPPF

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Halima’s Story with Mucous Membrane Pemphigoid

Halima’s Story with Mucous Membrane Pemphigoid

  • Post author:PW Collaborator
  • Post published:April 15, 2025
  • Post category:Rare Disease

Patient Worthy is so grateful to our partners IPPF-The International Pemphigus & Pemphigoid Foundation and for the change to share Halima's story.  IPPF's mission is to improve the quality of…

Continue Reading Halima’s Story with Mucous Membrane Pemphigoid
Raising Awareness to Address The Needs of Pemphigus Patients
source: pixabay.com

Raising Awareness to Address The Needs of Pemphigus Patients

  • Post author:Kendall Mason
  • Post published:March 24, 2021
  • Post category:Pemphigus and pemphigoid

Back in October, the International Pemphigus & Pemphigoid Foundation (IPPF) took another step in their plan to learn from and work with patients to increase awareness for pemphigus. They held…

Continue Reading Raising Awareness to Address The Needs of Pemphigus Patients
Carolyn’s Story -Pemphigoid Awareness at DNA 2019

Carolyn’s Story -Pemphigoid Awareness at DNA 2019

  • Post author:Rebekah
  • Post published:April 3, 2019
  • Post category:Pemphigus and pemphigoid/Rare Disease

If you haven’t heard of bullous pemphigoid, you’re not alone, the condition isn’t typically well known even by physicians. For those living with it, this tends to mean a long,…

Continue Reading Carolyn’s Story -Pemphigoid Awareness at DNA 2019
IPPF International Conference Wrap-Up!
Source: Pixabay

IPPF International Conference Wrap-Up!

  • Post author:Kathy Devanny
  • Post published:August 16, 2017
  • Post category:Pemphigus and pemphigoid/Rare Disease

Patient Worthy’s very own contributor Iva Rauh, with a tiny nudge from Patient Worthy, attended the International Pemphigus Pemphigoid Foundation’s Conference in Lubeck, Germany. Who better to learn about the latest developments than…

Continue Reading IPPF International Conference Wrap-Up!
Dental Student Awareness: Boston University
Source: The International Pemphigus and Pemphigoid Foundation

Dental Student Awareness: Boston University

  • Post author:Patient Worthy Contributor
  • Post published:June 2, 2017
  • Post category:Pemphigus and pemphigoid/Rare Disease

The below article was originally published on May 31st, 2017 on the International Pemphigus and Pemphigoid Foundation website, and is being republished here with permission. It wasn’t easy getting to…

Continue Reading Dental Student Awareness: Boston University
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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