Kallmann syndrome – Patient Worthy

Kallmann Syndrome – Absent Puberty: A Rare Patient Story

Post author:[email protected]
Post published:October 14, 2021
Post category:Kallmann syndrome

Written by Neil Smith I was labelled as a "late bloomer" as a teenager. I did not start puberty at the same time as my friends. Even when I started…

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Kallmann Syndrome: Absent Puberty

Post author:[email protected]
Post published:January 27, 2021
Post category:Kallmann syndrome

Written by Neil Smith I have a rare hormonal condition called Kallmann syndrome. Its main symptom is a failure to start or fully complete puberty. It is also associated with…

The Struggles of being a Rare Disease Patient in China

Post author:Trudy Horsting
Post published:April 5, 2019
Post category:Amyotrophic Lateral Sclerosis Hemophilia Kallmann syndrome Multiple Sclerosis Muscular Dystrophy Narcolepsy Niemann-Pick Disease Pompe Disease Primary Biliary Cholangitis Rare Disease

The State of Rare Diseases in China The Illness Challenge Foundation (ICF) is an organization devoted to easing the burdens that rare disease patients living in China face. They accomplish this…

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Clinical Trials Have Consequences and Not Just for Kallmann Syndrome

Post author:Erica Zahn
Post published:December 8, 2016
Post category:Kallmann syndrome Rare Disease

I vividly remember being four years old and going to the doctor with my mother and sister for a very important event: my sister and I were getting two vaccinations.…

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Why is a Micropenis Nothing to Laugh At?

Post author:Erica Zahn
Post published:September 20, 2016
Post category:Kallmann syndrome Rare Disease

Kallmann syndrome is a genetic condition caused by hypogonadotropic hypogonadism (HH), of which four separate types have been identified. People with Kallmann syndrome experience olfactory deficiencies, and puberty that is either…