Loeys-Dietz Syndrome Foundation

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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

Post author:Jessica Lynn
Post published:June 12, 2020
Post category:Loeys-Dietz syndrome Marfan Syndrome Timely

Education, research, support, and patient advocacy: these are just four of the amazing things that rare disease or disorder foundations offer. Many foundations seek to offer programs and resources to…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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