Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

meditation

  1. Home>
  2. meditation
Boosting Your Immune System: Tips for Patients with Gaucher Disease
Photo by JD Mason on Unsplash

Boosting Your Immune System: Tips for Patients with Gaucher Disease

  • Post author:Jessica Lynn
  • Post published:June 1, 2020
  • Post category:Gaucher Disease

Have you been feeling a little stiff or achy later? Maybe tired? I know that my body has undertaken a lot of stress thanks to the new life changes -…

Continue Reading Boosting Your Immune System: Tips for Patients with Gaucher Disease
Aloneness – a Note from the LRRO’s Bob Wyborn

Aloneness – a Note from the LRRO’s Bob Wyborn

  • Post author:Patient Worthy Contributor
  • Post published:May 20, 2020
  • Post category:COVID-19/Leukodystrophy/Rare Disease

This was originally published as the Seventh Newsletter  for the Leukodystrophy Resource Research Organisation (LRRO) on April 19th 2020. You can read more from their newsletter here. To state the blatantly…

Continue Reading Aloneness – a Note from the LRRO’s Bob Wyborn
CCA Gives Tips for Keeping A Healthy Mind, Body, and Soul
source: pixabay.com

CCA Gives Tips for Keeping A Healthy Mind, Body, and Soul

  • Post author:Sunniva Bean
  • Post published:April 24, 2020
  • Post category:COVID-19/Rare Disease

As reported in the CCA Blog, COVID-19 is reminding everyone what self-care means. When we can't rely on turning outwards to seek joy and comfort and good health, we must…

Continue Reading CCA Gives Tips for Keeping A Healthy Mind, Body, and Soul
Tune Into Your Body. It’s Telling You Something. A Message from CCA.

Tune Into Your Body. It’s Telling You Something. A Message from CCA.

  • Post author:Sunniva Bean
  • Post published:April 22, 2020
  • Post category:Rare Disease

As reported in CCA Kids Blog, the state of the world right now leaves us with many unanswered questions that can trigger a mayhem of emotions. When reconciling something that recolors…

Continue Reading Tune Into Your Body. It’s Telling You Something. A Message from CCA.
The Complex Relationship between Meditation and Chronic Pain

The Complex Relationship between Meditation and Chronic Pain

  • Post author:Sunniva Bean
  • Post published:September 19, 2019
  • Post category:Rare Disease

In western culture, many people tend to frame body and mind as two distinct parts of us. There are mental health disorders, then there are physical ailments. To treat disease,…

Continue Reading The Complex Relationship between Meditation and Chronic Pain

Featured


Picture of Family


Why Your Voice in Research Matters: Groundbreaking Studies are Changing What's Possible


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info