366 Talking Tips – Communicate Your Feelings
Sjögren's Disease and Mastocytosis are two very different illnesses, but have one thing in common: they are VERY rare. The infographic below provides information about what the disease is, prevalence…
we may look different on the outside, but each one of us is unique on the inside, and that holds true more so when it comes to treatment options. I'm…
RESEARCHERS BELIEVE SARCOIDOSIS IS ASSOCIATED WITH AN ABNORMAL IMMUNE SYSTEM RESPONSE, BUT WHAT TRIGGERS THIS RESPONSE IS NOT KNOWN. NOR DO DOCTORS KNOW WHETHER HEREDITY, ENVIRONMENT, OR LIFESTYLE AFFECTS THE…
if you give it your all, no one will be able to say that you didn't try hard enough. That applies across many possible situations but for rare disease patients,…
focus on the good and the good will be highlighted more often than not.
Allowing yourself to be hopeful, allowing yourself the opportunity to shape your future through the lens of hope, will make your rare disease fight that much easier. Fighting a rare…
April is right around the corner, and for those living with or caring for someone diagnosed with Sarcoidosis, you know very well that it's going to be National Sarcoidosis Awareness Month.…