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366 Talking Tips – Communicate Your Feelings

366 Talking Tips – Communicate Your Feelings

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Communicate Your Feelings
Rocky road isn’t just an ice cream

Rocky road isn’t just an ice cream

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading Rocky road isn’t just an ice cream
Participate don’t Procrastinate

Participate don’t Procrastinate

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading Participate don’t Procrastinate
Choose Silver Linings

Choose Silver Linings

  • Post author:Patient Worthy Contributor
  • Post published:April 6, 2016
  • Post category:Rare Disease

Continue Reading Choose Silver Linings
Fighter > Victim – Always Fight

Fighter > Victim – Always Fight

  • Post author:Patient Worthy Contributor
  • Post published:April 5, 2016
  • Post category:Rare Disease

Continue Reading Fighter > Victim – Always Fight
Motivate Don’t Stagnate

Motivate Don’t Stagnate

  • Post author:Patient Worthy Contributor
  • Post published:April 5, 2016
  • Post category:Rare Disease

Continue Reading Motivate Don’t Stagnate
Meme Monday Infographic – Sjögren’s and Mastocytosis

Meme Monday Infographic – Sjögren’s and Mastocytosis

  • Post author:Patient Worthy Contributor
  • Post published:April 4, 2016
  • Post category:Rare Disease

Sjögren's Disease and Mastocytosis are two very different illnesses, but have one thing in common: they are VERY rare. The infographic below provides information about what the disease is, prevalence…

Continue Reading Meme Monday Infographic – Sjögren’s and Mastocytosis
366 talking tips – Partnership Language

366 talking tips – Partnership Language

  • Post author:Patient Worthy Contributor
  • Post published:April 2, 2016
  • Post category:Rare Disease

Continue Reading 366 talking tips – Partnership Language
366 Talking Tips – Golden Rules

366 Talking Tips – Golden Rules

  • Post author:Patient Worthy Contributor
  • Post published:April 2, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Golden Rules
366 Talking Tips – Stop Talking!

366 Talking Tips – Stop Talking!

  • Post author:Patient Worthy Contributor
  • Post published:April 2, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Stop Talking!
Rare Disease Meme – Lifestyle

Rare Disease Meme – Lifestyle

  • Post author:Patient Worthy Contributor
  • Post published:April 2, 2016
  • Post category:Rare Disease

Continue Reading Rare Disease Meme – Lifestyle
Rare Disease Meme – Coffee: A cup with of benefits

Rare Disease Meme – Coffee: A cup with of benefits

  • Post author:Patient Worthy Contributor
  • Post published:April 2, 2016
  • Post category:Rare Disease

Continue Reading Rare Disease Meme – Coffee: A cup with of benefits
Rare Disease Meme – Silence and Reflection

Rare Disease Meme – Silence and Reflection

  • Post author:Patient Worthy Contributor
  • Post published:April 1, 2016
  • Post category:Rare Disease

Continue Reading Rare Disease Meme – Silence and Reflection
Rare Disease Meme – Habit

Rare Disease Meme – Habit

  • Post author:Patient Worthy Contributor
  • Post published:April 1, 2016
  • Post category:Rare Disease

Continue Reading Rare Disease Meme – Habit
366 Talking Tips – Watch Your Mouth!

366 Talking Tips – Watch Your Mouth!

  • Post author:Patient Worthy Contributor
  • Post published:April 1, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Watch Your Mouth!
Rare Disease Meme – Pain and Sickness

Rare Disease Meme – Pain and Sickness

  • Post author:Patient Worthy Contributor
  • Post published:April 1, 2016
  • Post category:Rare Disease

Continue Reading Rare Disease Meme – Pain and Sickness
#SarcoidosisAwareness: Treatment

#SarcoidosisAwareness: Treatment

  • Post author:Patient Worthy Contributor
  • Post published:April 1, 2016
  • Post category:Rare Disease

we may look different on the outside, but each one of us is unique on the inside, and that holds true more so when it comes to treatment options. I'm…

Continue Reading #SarcoidosisAwareness: Treatment
Rare Disease Meme – Simplicity

Rare Disease Meme – Simplicity

  • Post author:Patient Worthy Contributor
  • Post published:April 1, 2016
  • Post category:Rare Disease

Continue Reading Rare Disease Meme – Simplicity
Rare Disease Meme – You Know You’re Sick When

Rare Disease Meme – You Know You’re Sick When

  • Post author:Patient Worthy Contributor
  • Post published:March 31, 2016
  • Post category:Rare Disease

Continue Reading Rare Disease Meme – You Know You’re Sick When
#SarcoidosisAwareness: Cause

#SarcoidosisAwareness: Cause

  • Post author:Patient Worthy Contributor
  • Post published:March 31, 2016
  • Post category:Rare Disease

RESEARCHERS BELIEVE SARCOIDOSIS IS ASSOCIATED WITH AN ABNORMAL IMMUNE SYSTEM RESPONSE, BUT WHAT TRIGGERS THIS RESPONSE IS NOT KNOWN. NOR DO DOCTORS KNOW WHETHER HEREDITY, ENVIRONMENT, OR LIFESTYLE AFFECTS THE…

Continue Reading #SarcoidosisAwareness: Cause
#SarcoidosisAwareness: Fact!

#SarcoidosisAwareness: Fact!

  • Post author:Patient Worthy Contributor
  • Post published:March 31, 2016
  • Post category:Rare Disease

Continue Reading #SarcoidosisAwareness: Fact!
Rare Disease Meme: Doing Your Best

Rare Disease Meme: Doing Your Best

  • Post author:Patient Worthy Contributor
  • Post published:March 30, 2016
  • Post category:Rare Disease

if you give it your all, no one will be able to say that you didn't try hard enough. That applies across many possible situations but for rare disease patients,…

Continue Reading Rare Disease Meme: Doing Your Best
Rare Disease Meme – One Love

Rare Disease Meme – One Love

  • Post author:Patient Worthy Contributor
  • Post published:March 30, 2016
  • Post category:Rare Disease

focus on the good and the good will be highlighted more often than not.  

Continue Reading Rare Disease Meme – One Love
Rare Disease Meme: Open up to Hope

Rare Disease Meme: Open up to Hope

  • Post author:Patient Worthy Contributor
  • Post published:March 30, 2016
  • Post category:Rare Disease

Allowing yourself to be hopeful, allowing yourself the opportunity to shape your future through the lens of hope, will make your rare disease fight that much easier. Fighting a rare…

Continue Reading Rare Disease Meme: Open up to Hope
#SarcoidosisAwareness: Inflammation

#SarcoidosisAwareness: Inflammation

  • Post author:Patient Worthy Contributor
  • Post published:March 30, 2016
  • Post category:Rare Disease/Sarcoidosis

April is right around the corner, and for those living with or caring for someone diagnosed with Sarcoidosis, you know very well that it's going to be National Sarcoidosis Awareness Month.…

Continue Reading #SarcoidosisAwareness: Inflammation
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