monARC Bionetworks – Patient Worthy

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Empowering Patients and Accelerating Research: It’s Everyone’s Goal in the Rare Community

Post author:Trudy Horsting
Post published:June 27, 2017
Post category:Idiopathic Pulmonary Fibrosis IPF Rare Disease

The Pulmonary Fibrosis Warriors (PF Warriors) and monARC Bionetworks teamed up today to host a Facebook Live video, sharing important information about how patients can become more involved in research…

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monARC Bionetworks’ Data Sharing Could Benefit the Rare Disease Community

Post author:Trudy Horsting
Post published:May 24, 2017
Post category:Idiopathic Pulmonary Fibrosis IPF Rare Disease Timely

Scientists aren’t always the best at sharing amongst themselves. But sharing data could mean accelerated research. By making your own data available to scientists you can help contribute to a…

Empowering Patients and Accelerating Research: It’s Everyone’s Goal in the Rare Community

monARC Bionetworks’ Data Sharing Could Benefit the Rare Disease Community

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