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orphan drugs

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Only 21% of Top Partial Orphan Drug Spending Went to Rare Diseases
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Only 21% of Top Partial Orphan Drug Spending Went to Rare Diseases

  • Post author:Sunniva Bean
  • Post published:March 18, 2021
  • Post category:Rare Disease

As reported in NewsWise; rare drugs are few and far between, with a cliental of less than 200,000 Americans dissuading drug companies from taking on the enormous charge of developing…

Continue Reading Only 21% of Top Partial Orphan Drug Spending Went to Rare Diseases
Study Finds That Clinical Costs for Orphan Drugs are Lower Than Costs for Non-Orphan Drugs
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Study Finds That Clinical Costs for Orphan Drugs are Lower Than Costs for Non-Orphan Drugs

  • Post author:James Moore
  • Post published:March 4, 2019
  • Post category:Rare Disease

According to a story from Regulatory Affairs Professionals Society, a recent study found that the research and development costs for new molecular entities that were classified as orphan drugs was…

Continue Reading Study Finds That Clinical Costs for Orphan Drugs are Lower Than Costs for Non-Orphan Drugs
Orphan Drugs – How a National Health Crisis Spawned a Multi-Billion Dollar Industry
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Orphan Drugs – How a National Health Crisis Spawned a Multi-Billion Dollar Industry

  • Post author:Scott Carlson
  • Post published:November 19, 2018
  • Post category:Rare Disease

99% Invisible recently reported on the history of "Orphan Drugs." These drugs are an enormous source of income for pharmaceutical companies - but the explosion in their production is a…

Continue Reading Orphan Drugs – How a National Health Crisis Spawned a Multi-Billion Dollar Industry
Parents Fear Tax Cut Will Endanger Their Daughter with Angelman Syndrome
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Parents Fear Tax Cut Will Endanger Their Daughter with Angelman Syndrome

  • Post author:Andres Rovira
  • Post published:December 18, 2017
  • Post category:Angelman Syndrome/Rare Disease

Jay and Amy Granzow are among the many worried parents fearing the GOP tax plan, because of the threat it brings to orphan drug research. The Manhattan Beach couple fear…

Continue Reading Parents Fear Tax Cut Will Endanger Their Daughter with Angelman Syndrome
Here’s What’s on The Orphan Drug Hall of Fame
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Here’s What’s on The Orphan Drug Hall of Fame

  • Post author:Sarah Lau
  • Post published:August 11, 2017
  • Post category:Rare Disease

Orphan drugs, for those of you who don’t know, are those designated especially for rare diseases. They respond to a public health need, but not necessarily an economic need by…

Continue Reading Here’s What’s on The Orphan Drug Hall of Fame
How HAE Changed This Woman’s Perspective of the World

How HAE Changed This Woman’s Perspective of the World

  • Post author:Erica Zahn
  • Post published:April 4, 2016
  • Post category:HAE/Rare Disease

As a writer, every once in a while, I'll have an "A-HA!" moment: Usually when I realize my perception about something is off kilter, and the truth suddenly becomes apparent.…

Continue Reading How HAE Changed This Woman’s Perspective of the World

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