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Palliative Care

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Palliative Care for Idiopathic Pulmonary Fibrosis Patients
Source: Pixabay.com

Palliative Care for Idiopathic Pulmonary Fibrosis Patients

  • Post author:Kendall Mason
  • Post published:December 1, 2020
  • Post category:Idiopathic Pulmonary Fibrosis

There is a stigma that comes with the term "palliative care," as it is typically associated with hospice and terminal illnesses. This is not the case, as palliative care is…

Continue Reading Palliative Care for Idiopathic Pulmonary Fibrosis Patients
Palliative Care 101 from the 2017 Global Genes Summit
source: pixabay.com

Palliative Care 101 from the 2017 Global Genes Summit

  • Post author:Rebekah
  • Post published:September 20, 2017
  • Post category:Rare Disease

If you missed the 2017 Global Genes Patient Summit's breakout session Strengthening your Care & Support Team, Home Team Advantage: How to Arrange for Palliative Care, we're here to fill…

Continue Reading Palliative Care 101 from the 2017 Global Genes Summit
Does Palliative Care Have a Role in Living with Rare Disease?
https://pixabay.com/en/treatment-finger-keep-hand-wrist-1327811/

Does Palliative Care Have a Role in Living with Rare Disease?

  • Post author:PW Blogger
  • Post published:April 4, 2017
  • Post category:Cystic Fibrosis/Rare Disease

What comes to mind when you hear "palliative care?" Most people might think it only helps someone with end-of-life care. But did you know that palliative care can actually lift spirits…

Continue Reading Does Palliative Care Have a Role in Living with Rare Disease?
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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