pf warriors – Patient Worthy

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Empowering Patients and Accelerating Research: It’s Everyone’s Goal in the Rare Community

Post author:Trudy Horsting
Post published:June 27, 2017
Post category:Idiopathic Pulmonary Fibrosis IPF Rare Disease

The Pulmonary Fibrosis Warriors (PF Warriors) and monARC Bionetworks teamed up today to host a Facebook Live video, sharing important information about how patients can become more involved in research…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

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