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Grieving Mother Pays Tribute to Rare Disease Son
Source: Pixabay

Grieving Mother Pays Tribute to Rare Disease Son

  • Post author:Andres Rovira
  • Post published:October 19, 2017
  • Post category:Sturge-Weber Syndrome

After the long hard fight against Sturge-Weber syndrome, 23-year-old Craig Morrison could fight no longer. He passed last Monday following complications with his rare disease. Sturge-Weber syndrome springs at birth…

Continue Reading Grieving Mother Pays Tribute to Rare Disease Son
Out of the Hurricane and Into a Coma
Source: Pixabay

Out of the Hurricane and Into a Coma

  • Post author:Andres Rovira
  • Post published:September 29, 2017
  • Post category:Sturge-Weber Syndrome

Amber and Ryan Dollinger were preparing for the birth of their second son just as Hurricane Harvey was plowing toward them dead-on. They fled their Beaumont, Texas home and found…

Continue Reading Out of the Hurricane and Into a Coma
News Anchor Shares Her Baby’s Port-Wine Stain on Facebook
Source: pixabay

News Anchor Shares Her Baby’s Port-Wine Stain on Facebook

  • Post author:Andres Rovira
  • Post published:September 26, 2017
  • Post category:Rare Disease/Sturge-Weber Syndrome

Des Moines news anchor, Elizabeth Klinge, is receiving quite the social media buzz after posting heart-warming photos of her daughter Hanalay and her notable port-wine stain. The photos garnered a…

Continue Reading News Anchor Shares Her Baby’s Port-Wine Stain on Facebook
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