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POTS awareness

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Navigating a New Life with “The Trifecta” – POTS/MCAS/EDS

Navigating a New Life with “The Trifecta” – POTS/MCAS/EDS

  • Post author:Patient Worthy Contributor
  • Post published:May 20, 2025
  • Post category:Dysautonomia

My name is Sarah. I am a solo mother to a beautiful five-year-old named Ensley! I’m not quite sure where to begin, but my world abruptly changed post-COVID-infection: January 7th…

Continue Reading Navigating a New Life with “The Trifecta” – POTS/MCAS/EDS
How to “Eat Dance Laugh” for POTS
Source: pixabay.com

How to “Eat Dance Laugh” for POTS

  • Post author:Sabina Kennedy
  • Post published:October 27, 2016
  • Post category:Dysautonomia/POTS

When I became a parent, I wasn’t acutely aware of what I was signing up for. In the beginning, my role was highly predictable and, in my mind, the newborn stage…

Continue Reading How to “Eat Dance Laugh” for POTS
5 Things You Need To Know About Living Happy With POTS
Pixabay

5 Things You Need To Know About Living Happy With POTS

  • Post author:Kiki Jones
  • Post published:July 21, 2016
  • Post category:Dysautonomia/POTS/Rare Disease

Despite what strangers and acquaintances seem to think, I’m not a positive or even particularly friendly person. I rarely, if ever, look on the bright side—I don’t even consider literal…

Continue Reading 5 Things You Need To Know About Living Happy With POTS
The Astonishing Way This Community Supports POTS

The Astonishing Way This Community Supports POTS

  • Post author:PW Blogger
  • Post published:June 30, 2016
  • Post category:Dysautonomia/POTS/Rare Disease

Nicole graduated high school, but was forced to withdraw from college because she suffers from dysautonomia, particularly postural orthostatic tachycardia syndrome (POTS). This disorder causes rapid heartbeat, fainting spells upon standing,…

Continue Reading The Astonishing Way This Community Supports POTS

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