As many parents within the rare disease and chronic illness community know, it can sometimes be difficult to parent a medically complex child. It is important to practice self-care…
Read Parts 1 and 2 of Katie's story, where we discuss the diagnostic journey, precocious puberty, and Katie's ZMYM2-related disorder diagnosis. Potential ZMYM2 Symptoms and the Need for Research The geneticist mentioned that symptoms…
Before you continue reading, make sure to check out Part 1 of Katie's story. True Precocious Puberty: The First Official Diagnosis The endocrinologist first ran a blood test, later followed with a…
Childhood is a time for innocence, exploring, and fun. It has always been said that children grow up too fast and each moment should be treasured. First words, first steps,…
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