rare genetic disease – Patient Worthy

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Mom Founds “Colton’s Cause” to Support Rare Disease Families

Post author:Jessica Lynn
Post published:June 15, 2022
Post category:Rare Disease

Personable. Loving. Impactful. Those are all words that Angie Kane would use to describe her son Colton, who passed away at 21 years old in October 2021. When Angie talks…

Pexels / Pixabay

The American College of Medical Genetics and Genomics Have Addressed High Drug Costs for Patients with Rare Diseases

Post author:Anna Hewitt
Post published:September 18, 2018
Post category:Rare Disease

Recent medical developments have led to new drugs designed to treat rare genetic disorders. However, the high cost of many of these drugs limits the number of patients who have…

Source: Pixabay

Butler Basketball Coach Signs 7-Year-Old With Rare Disease

Post author:Meagan Fulps
Post published:January 16, 2018
Post category:Rare Disease

January 5th was not only a great day for the Butler basketball community, it was a dream come true for the bulldog fan Seth Dennison, reported Fox 59. The 7-year-old…

Mom Founds “Colton’s Cause” to Support Rare Disease Families

The American College of Medical Genetics and Genomics Have Addressed High Drug Costs for Patients with Rare Diseases

Butler Basketball Coach Signs 7-Year-Old With Rare Disease

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