Mom Founds “Colton’s Cause” to Support Rare Disease Families

Personable. Loving. Impactful. Those are all words that Angie Kane would use to describe her son Colton, who passed away at 21 years old in October 2021. When Angie talks about her son, she explains that he made a mark on everyone who met him – even though Colton was non-verbal. According to KMOV, Colton had a rare genetic disorder. In fact, his condition was so rare that it does not even have a given name. After Colton passed away, Angie became increasingly committed to aiding other families whose children have rare conditions. That’s why she developed Colton’s Cause, a nonprofit organization.

Angie’s Story

For years, Angie traveled around the country with Colton to see if anybody could provide them with a diagnosis. Colton presented with symptoms like epilepsy, visual impairment, and difficulty eating. He required nutritional assistance and full daily care. Angie says that she is thankful for the medical professionals who worked in her home with her to take care of her son. Colton lived to be 21 years old, almost unheard of with his particular disease.

He was, and remains, incredibly special to Angie; she shares that his loss absolutely broke her heart, and she created Colton’s Cause to pay tribute to her son.

About Colton’s Cause

On the Colton’s Cause website, Angie explains that the nonprofit’s mission is:

to improve the quality of life for families of special needs children and young adults by providing financial support for necessary nursing care, mobility equipment, modifications to the home (handicapped accessibility), and other special needs.

In providing assistance to these families, Colton’s Cause hopes to provide support and strength to those in need. Altogether, the nonprofit has already raised over $30k to assist families within the local area. Soon, Colton’s Cause is also having a pub crawl on June 18th, 2022 (11am) to June 19th, 2022 (3am) to raise more funds. The pub crawl will include a t-shirt and commemorative cup, a brunch buffet, and a free drink. If you are located in the St. Louis area or surrounding areas, consider purchasing a ticket!

Jessica Lynn

Jessica Lynn

Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.

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