RDAC – Patient Worthy

Connecticut is Now the 23rd State to Implement a Permanent Rare Disease Advisory Council

Post author:Trudy Horsting
Post published:June 16, 2022
Post category:Rare Disease

At the end of May, 2022, the Governor of Connecticut, Ned Lamont, established a permanent Rare Disease Advisory Council (RDAC) for the state by signing House Bill 5500 (HB 5500).…

Colorado Just Established a Rare Disease Advisory Council!

Post author:Kendall Mason
Post published:June 15, 2022
Post category:Rare Disease

Advocacy is an extremely important part of supporting and helping the rare disease community. A big part of this is rare disease advisory councils (RDACs), which are governmental groups comprised…

Rare Disease Advisory Council Created in Georgia

Post author:Kendall Mason
Post published:May 19, 2022
Post category:Rare Disease

Because of their rarity, rare diseases often aren't considered or represented in the government. But state by state, we are slowly gaining representation within the legal system. This is being…

Connecticut is Now the 23rd State to Implement a Permanent Rare Disease Advisory Council

Colorado Just Established a Rare Disease Advisory Council!

Rare Disease Advisory Council Created in Georgia

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