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San Filippo Syndrome

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FDA Approves Fayuvi, the First Gene Therapy for Children with Sanfilippo Syndrome Type A

FDA Approves Fayuvi, the First Gene Therapy for Children with Sanfilippo Syndrome Type A

  • Post author:Kathy Devanny
  • Post published:September 21, 2026
  • Post category:MPS III (Sanfilippo Syndrome)

One-time treatment provides a new option for pediatric patients with a rare, progressive genetic disorder As announced in a recent press release, the U.S. Food and Drug Administration has approved…

Continue Reading FDA Approves Fayuvi, the First Gene Therapy for Children with Sanfilippo Syndrome Type A
Flipping MPS III Loss into World Class Parenting
https://pixabay.com/en/child-cute-dad-father-love-man-1835730/

Flipping MPS III Loss into World Class Parenting

  • Post author:Sabina Kennedy
  • Post published:July 5, 2017
  • Post category:Mucopolysaccharidosis/Rare Disease

Losing a child is a loss like no other—the most devastating experience a parent can face. And for one daddy who lost his little girl to mucopolysaccharidosis, a very rare genetic…

Continue Reading Flipping MPS III Loss into World Class Parenting
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