• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Share Your Story with Chronic Obstructive Pulmonary Disease (COPD)
Click Here to Read Real Patient & Caregiver Stories
Click Here To Share Your Story With MASH

Sjogren’s

  1. Home>
  2. Sjogren’s>
  3. Page 2
When Childhood Cancer “Cure” Leads To Rare Problem

When Childhood Cancer “Cure” Leads To Rare Problem

  • Post author:Erica Zahn
  • Post published:March 29, 2016
  • Post category:Rare Disease/Sarcoidosis/Sjogren's Syndrome

Back in the 1975, the movie Jaws came out right before the summer season began. The movie posters showed the gaping open mouth of a Great White shark with a…

Continue Reading When Childhood Cancer “Cure” Leads To Rare Problem
Sjögren’s Foundation is Sick of Complaints and has the Guidelines to Prove it!

Sjögren’s Foundation is Sick of Complaints and has the Guidelines to Prove it!

  • Post author:Erica Zahn
  • Post published:February 9, 2016
  • Post category:Sjogren's Syndrome

Sjögren’s syndrome is a chronic autoimmune disease that causes the body's white blood cells (the cells that ordinarily fight infection) to attack the moisture producing glands. Patients may have symptoms that include…

Continue Reading Sjögren’s Foundation is Sick of Complaints and has the Guidelines to Prove it!
4 Million People Affected By This Disease, What You Should Know
4 Million people with Sjogren's Syndrome and it's still hard to diagnose.

4 Million People Affected By This Disease, What You Should Know

  • Post author:Lady Kehveen Abernathy
  • Post published:November 19, 2015
  • Post category:Rare Disease/Sjogren's Syndrome

Why is it that a disease discovered 127 years ago still falls so low under the radar? Not just that, but a disease affecting 4 million people in the United…

Continue Reading 4 Million People Affected By This Disease, What You Should Know

10 Things People with Sjögren’s Should or Should Not Be Eating

  • Post author:Patient Worthy Contributor
  • Post published:October 14, 2015
  • Post category:Rare Disease/Sjogren's Syndrome

For those who have Sjögren's syndrome, you don’t need the lowdown. But for those unfamiliar, it’s commonly associated with two main symptoms—dry eyes and a dry mouth. Why? Because certain…

Continue Reading 10 Things People with Sjögren’s Should or Should Not Be Eating
This is Why Venus Williams Should Be Your New Favorite Player

This is Why Venus Williams Should Be Your New Favorite Player

  • Post author:Patient Worthy Contributor
  • Post published:October 8, 2015
  • Post category:Rare Disease/Sjogren's Syndrome

Athletes always seem to be on a level beyond reach of those around them, much like a revered saint or goddess. Their physical prowess is awe-inspiring, the pinnacle of human strength and…

Continue Reading This is Why Venus Williams Should Be Your New Favorite Player
  • Go to the previous page
  • 1
  • 2
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info