As far as I can remember, I have always had an intolerance of heat and cold. I can remember at a young age not wanting to go outside in the…
My chronic health journey is super complicated. When I first started experiencing my symptoms I wouldn’t tell anyone what I was feeling. I would wake up feeling very achy, sort…
As reported by drugs.com, at the American College of Rheumatology (ACR) Convergence congress, Novartis presented encouraging results from its Phase III NEPTUNUS-1 and NEPTUNUS-2 trials, highlighting the potential of ianalumab…
I came to the United States from the Philippines in June 2016, full of excitement and dreams. I was ready to build a new life, work hard, and create something…
Autoimmune diseases affect an estimated 400 to 600 million people globally, posing a growing challenge for healthcare systems and patients alike. Traditionally, treatment has focused on symptom management through broad…
Novartis has announced encouraging results from two pivotal studies involving its experimental drug, ianalumab, targeting two different autoimmune indications. As reported by BioPharma Dive, the Swiss pharmaceutical company revealed positive data…
According to Dr. Steven Carson, of all the autoimmune disorders that are both chronic and joint-related, Sjogren's syndrome remains the hardest to manage. Standards of care designed to guide doctors…
Have you ever heard that a single postage stamp on the blade of a helicopter can cause it to crash? We might react with disbelief or disillusionment before we consider…
The Sjogren's Syndrome Foundation wants to spread awareness on this condition. The Foundation, alongside its members and volunteers, wants to use its platform to educate people about the Sjogren's syndrome.…
¿Por qué es todavía desconocida una enfermedad descubierta hace 127 años? No sólo eso, sino una enfermedad que afecta a 4 millones de personas en los Estados Unidos hoy! La…
Attention! A Sjögren’s Support Group will be meeting in Ohio. This meeting will take place February 12th from 12:00 pm-2:00 pm at Flower Hospital in the Conference Center Building, 5200 Harroun Road,…
There’s an interesting blog post you’ve got to check out—especially if you’ve been feeling guilty about telling people “No” while living with or caring for a loved one who has…
A team research of uber-smart researchers in Seoul, South Korea, have published their study on how common a dual diagnosis of fibromyalgia is in patients who have Sjogren's syndrome as…
A recent study suggests there may be relief for dry eye sufferers. Researchers at the Scripps Research Institute found promise in introducing regenerative cells to the gland responsible for tear production. The…
Para aquellos que tienen el síndrome de Sjögren, que no necesita toda la verdad. Pero para aquellos que no conocen, se asocia comúnmente con los ojos dos principales síntomas-secos y…
Happy Post-USA Election Day Friends! TGIF Patient Worthians, am I right?! Hopefully this weekend is full of rest, relaxation and positivity! Maybe just avoid social media for a while and hang…
For decades, Venus Williams has been a powerhouse in the world of tennis. Since becoming pro in 1994, she has won 7 Grand Slam Singles titles and was formerly ranked No.…
Los atletas siempre parecen estar en un nivel más allá del alcance de los que les rodean, al igual que un santo o una diosa venerada. Su destreza física es…
When you have an autoimmune disease like Sjogren's and you've heard your doctor tell you for the umpteenth time that you really need to exercise, you kinda just want to…
Sjögren’s syndrome is an autoimmune disease that affects the moisture-producing glands in the body, including the salivary and tear glands. Very often, it's accompanied by rheumatoid arthritis. It's thought to…
Q: What does an autoimmune disease that primarily affects tear glands and salivary glands have in common with a James Clavell novel? A: Nothing, really—other than the fact that the…
Hello Again Patient Worthians! This week we are highlighting part TWO of a story about a man with cystic fibrosis, racing for his non-profit RaceCF and to spread awareness of exercise therapy…
When the legendary Venus Williams was diagnosed with Sjogren’s in 2011, it sent shock waves throughout the tennis industry and the world. Seems Venus is doing well these days, which…
Sjögren's Disease and Mastocytosis are two very different illnesses, but have one thing in common: they are VERY rare. The infographic below provides information about what the disease is, prevalence…
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