the boy in the blue – Patient Worthy

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Rare Community Profiles: “The Boy in the Blue”: An MPS and Mental Health Awareness Project

Post author:Jessica Lynn
Post published:May 30, 2023
Post category:MPS VI (Maroteaux-Lamy syndrome)Mucopolysaccharidosis Rare Disease

Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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