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tirosinemia

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Las mamás saben mejor (y los médicos necesitan escuchar)

Las mamás saben mejor (y los médicos necesitan escuchar)

  • Post author:Patient Worthy Contributor
  • Post published:November 7, 2016
  • Post category:Rare Disease/Tyrosinemia

De acuerdo, Dr.House: Tenemos padres por primera vez que afirman su recién nacido es "irritable, inquieto, vómitos explosivos, y se niega a comer." Aunque también decir que el niño tiene…

Continue Reading Las mamás saben mejor (y los médicos necesitan escuchar)
Quebec sirve para algo: Investigación de Tratamiento para la tirosinemia

Quebec sirve para algo: Investigación de Tratamiento para la tirosinemia

  • Post author:Patient Worthy Contributor
  • Post published:November 1, 2016
  • Post category:Rare Disease/Tyrosinemia

¿Quién sabía que el colonialismo podría ser una de las principales causas de las enfermedades raras ?! Al menos, ese es el caso de muchos quebequenses. La tirosinemia, que afecta…

Continue Reading Quebec sirve para algo: Investigación de Tratamiento para la tirosinemia
Necesitaba un hígado, pero lo que ella da es Lo que es especial
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Necesitaba un hígado, pero lo que ella da es Lo que es especial

  • Post author:Patient Worthy Contributor
  • Post published:October 19, 2016
  • Post category:Rare Disease/Tyrosinemia

La vida con una grave enfermedad afecta a más de la salud física; salud mental a menudo sufre, también. Que es una de las razones Anna Barlow tomó nota cuando…

Continue Reading Necesitaba un hígado, pero lo que ella da es Lo que es especial
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*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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