• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Share Your Rare Disease Story
Click Here To Share Your Story With Myositis
Click Here To Share Your Story With MASH

TS

  1. Home>
  2. TS
October 10: Disc Golf Fundraiser for NJ Center for Tourette Syndrome and Associated Disorders

October 10: Disc Golf Fundraiser for NJ Center for Tourette Syndrome and Associated Disorders

  • Post author:Jessica Lynn
  • Post published:September 15, 2021
  • Post category:Tourette syndrome

Do you love sports? How about fundraising for a good cause? Well, if you’re located in New Jersey, you may soon be able to take part in a fantastic fundraising…

Continue Reading October 10: Disc Golf Fundraiser for NJ Center for Tourette Syndrome and Associated Disorders
New Research Could Lead to Improved Tourette Syndrome Treatment
source: pixabay.com

New Research Could Lead to Improved Tourette Syndrome Treatment

  • Post author:Patient Worthy Contributor
  • Post published:July 14, 2020
  • Post category:Tourette syndrome

By Lauren Thayer from In The Cloud Copy Tourette syndrome (TS) is a neurological disorder that is characterized by involuntary, repetitive movements and vocalizations.  These movements and vocalizations are called…

Continue Reading New Research Could Lead to Improved Tourette Syndrome Treatment
Tourette Syndrome Trial Will not Proceed due to Efficacy Issues
stevepb / Pixabay

Tourette Syndrome Trial Will not Proceed due to Efficacy Issues

  • Post author:Kendall Mason
  • Post published:April 23, 2020
  • Post category:Tourette syndrome

A clinical trial of Lu AG06466 for the treatment of Tourette syndrome ended in failure recently, as it did not meet its primary endpoints in comparison to a placebo. While…

Continue Reading Tourette Syndrome Trial Will not Proceed due to Efficacy Issues
New Adult Specialty Clinic for Turner Syndrome in Houston Recognized by the TSGA

New Adult Specialty Clinic for Turner Syndrome in Houston Recognized by the TSGA

  • Post author:Trudy Horsting
  • Post published:May 27, 2019
  • Post category:Turner Syndrome

Turner Syndrome Turner Syndrome (TS) is a rare disease caused by the partial or complete absence of the second sex chromosome. It is grossly underreported because 95% of fetuses who…

Continue Reading New Adult Specialty Clinic for Turner Syndrome in Houston Recognized by the TSGA
Touretteshero: The Creative Force Making Tourettes Fun
Source: Pixabay

Touretteshero: The Creative Force Making Tourettes Fun

  • Post author:Patient Worthy Contributor
  • Post published:November 27, 2017
  • Post category:Rare Disease/Tourette syndrome

Tourette syndrome (TS) is a rare, and widely misunderstood neurological condition. It causes involuntary vocalizations or movements, which are called tics. This can appear in many forms: repetitive throat clearing…

Continue Reading Touretteshero: The Creative Force Making Tourettes Fun
Why the Best Partner for Tourette’s is HRT
Source: pixabay.com

Why the Best Partner for Tourette’s is HRT

  • Post author:Alisha Stone
  • Post published:November 22, 2016
  • Post category:Rare Disease/Tourette syndrome

I dig those peeps at WorryWiseKids.org who are helping to raise the bar to better understand Tourette’s syndrome (TS). Their mission is to lessen the suffering that children with Tourette's…

Continue Reading Why the Best Partner for Tourette’s is HRT
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney Cancerhttps://patientworthy.com/2026/01/20/finding-strength-together-scott-and-katies-journey-with-advanced-kidney-cancer/
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info