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Editor’s Choice: The Financial Burden on MS Patients

Editor’s Choice: The Financial Burden on MS Patients

  • Post author:Colby Rogers
  • Post published:September 25, 2020
  • Post category:Dystonia/Multiple Sclerosis/Rare Disease

Happy Friday! September is a packed with rare disease awareness, as we've been featuring all month long. We wanted to make sure to draw attention to Dystonia Awareness Month, which…

Continue Reading Editor’s Choice: The Financial Burden on MS Patients
Editor’s Choice: Patients Helping Patients In the Midst of a Pandemic

Editor’s Choice: Patients Helping Patients In the Midst of a Pandemic

  • Post author:Colby Rogers
  • Post published:September 18, 2020
  • Post category:Beta Thalassemia/Rare Disease/Tyrosinemia

Happy Friday! Sept. 24 is FH Awareness Day. Familial hypercholesterolemia is a gentic disorder characterized by the inability of the body to remove LDL -- sometimes called "bad cholesterol" --…

Continue Reading Editor’s Choice: Patients Helping Patients In the Midst of a Pandemic
Why You’ll Be Glad Your Newborn Baby Was Screened for 50 Disorders
[Source: Pixabay.com]

Why You’ll Be Glad Your Newborn Baby Was Screened for 50 Disorders

  • Post author:Erica Zahn
  • Post published:October 31, 2016
  • Post category:Rare Disease/Tyrosinemia

Congratulations! You're about to have a bundle of joy! You have names picked out, and you've been preparing for the past nine months to welcome this new little family member.…

Continue Reading Why You’ll Be Glad Your Newborn Baby Was Screened for 50 Disorders
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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