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Join the 2019 Walk for Behcet’s Disease in Orlando, Florida for Awareness Day!

Join the 2019 Walk for Behcet’s Disease in Orlando, Florida for Awareness Day!

  • Post author:Jean Martell
  • Post published:May 17, 2019
  • Post category:Behçet's/Rare Disease

Behcet’s Awareness Day is May 20th! Behcet’s disease (also known as Behçet’s and Behçet’s syndrome) is a rare condition that causes chronic inflammation which manifests as ulcers (commonly referred to…

Continue Reading Join the 2019 Walk for Behcet’s Disease in Orlando, Florida for Awareness Day!
Walk the Walk During HAE Awareness Day
source: pixabay.com

Walk the Walk During HAE Awareness Day

  • Post author:Jean Martell
  • Post published:May 16, 2019
  • Post category:Hereditary Angiodema

Thursday May 16th is HAE Day, when we observes the hopes, struggles, and resilience of the Hereditary Angioedema (HAE) patient community! What is HAE? “Angio” means pertaining to blood vessels, and…

Continue Reading Walk the Walk During HAE Awareness Day
Energy Walk for Life Sets Mitochondrial Disease Advocacy in Motion
Free-Photos / Pixabay

Energy Walk for Life Sets Mitochondrial Disease Advocacy in Motion

  • Post author:Samuel Sachs
  • Post published:September 14, 2018
  • Post category:Mitochondrial Disease/Timely

Linda Ramsey had a son named Kevin. In the beginning everything was okay, and Kevin grew normally for a short time. After a few months, his experienced difficulty swallowing. He…

Continue Reading Energy Walk for Life Sets Mitochondrial Disease Advocacy in Motion
¿Vas a correr, Eh? Canadienses corren por una buena causa
Free-Photos / Pixabay

¿Vas a correr, Eh? Canadienses corren por una buena causa

  • Post author:Patient Worthy Contributor
  • Post published:May 6, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

El 7 de junio de 2015, miles de personas salieron a las calles a través de Canadá en el Paseo anual para poner fin a la artritis. Una causa principal…

Continue Reading ¿Vas a correr, Eh? Canadienses corren por una buena causa

Are you Walking, Eh? Canadians Lace Up for a Good Cause

  • Post author:Patient Worthy Contributor
  • Post published:June 12, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

On June 7, 2015, thousands of people took to the streets across Canada in the annual Walk to End Arthritis. A leading cause of disability, arthritis costs the Canadian economy $33 billion…

Continue Reading Are you Walking, Eh? Canadians Lace Up for a Good Cause

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