By Danielle Bradshaw from In The Cloud Copy The chances of your child having Jordan’s syndrome are incredibly small. That, however, was not the reality for Joe Lang and his…
Alex Barker never planned on marrying someone with his same rare diagnosis, but he has to admit, the shared experience has made him and his wife closer. Alex has Moebius…
Last time Patient Worthy wrote about Mila Makovec, she was seven and beginning a cutting-edge experimental treatment for her Batten disease. It’s now nine months later, and Mila is showing…
After their own personal struggles with cancer, the Rendina family are working to raise money and awareness to fight the disease. For more information, you can view the source press…
Colin Wells, an actor who has previously played roles in the TV shows Hollyoaks and Casualty, has a son and daughter who are both diagnosed with mitochondrial disease. The source…
William Eames, a five-year-old boy from a village in Hertfordshire, England, was diagnosed with Duchenne muscular dystrophy when he was three. Since then, his family have worked hard to raise…
Moms: The ultimate multitaskers. Whether they're stay-at-home moms or working mom, these strong ladies have a way of getting stuff done, come hell or high water - or a chronic…
She was given 15 months if she didn't take action. Heather Von St. James was in the prime of her life. She was the co-owner of a salon/spa where she…
It's hard enough to find love in this world. Apps, matchmaking websites, and nosy friends can do their best to lend a hand - but at the end of the…
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