November 10 is World NET Cancer Day: Spreading Rare Disease Awareness
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November 10 is World NET Cancer Day: Spreading Rare Disease Awareness

November 10 is recognized as World Neuroendocrine Tumor (NET) Cancer Day, a time to spread awareness about neuroendocrine tumors, a group of rare cancers, among the medical field and in…

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Compassion Corner: A Patient Almost Died Because of a Doctor’s Lack of Understanding and Compassion
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Compassion Corner: A Patient Almost Died Because of a Doctor’s Lack of Understanding and Compassion

  Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…

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Surufatinib Approved in China For the Treatment of Pancreatic Neuroendocrine Tumors
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Surufatinib Approved in China For the Treatment of Pancreatic Neuroendocrine Tumors

The National Medical Products Administration (NMPA) of China has recently approved surufatinib for drug registration for the treatment of advanced pancreatic neuroendocrine tumors (pNETs). HUTCHMED Limited recently announced the news,…

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Four New Rare Disease Studies Receive $19 Million in Funding
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Four New Rare Disease Studies Receive $19 Million in Funding

The Patient-Centered Outcomes Research Institute (PCORI) has announced that it will be contributing funding for four new studies focused on four different rare diseases. The funding will top out at…

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Neuroendocrine Tumors Trial Results Demonstrate Preserved Quality of Life With Doubled Treatment Dose
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Neuroendocrine Tumors Trial Results Demonstrate Preserved Quality of Life With Doubled Treatment Dose

According to a story from businesswire.com, the biopharmaceutical company Ipsen recently presented a total of 9 study abstracts at the recent 18th annual conference of the European Neuroendocrine Tumor Society…

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FDA Approves PRRT to Treat Neuroendocrine Tumors
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FDA Approves PRRT to Treat Neuroendocrine Tumors

  Patients with inoperable or metastasized neuroendocrine tumors (NETs) may now benefit from recently FDA approved peptide receptor radionuclide therapy (PRRT) according to a recent article in MedPage Today. The…

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FDA Grants Orphan Drug Designation for Treatment of Pancreatic Neuroendocrine Tumors
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FDA Grants Orphan Drug Designation for Treatment of Pancreatic Neuroendocrine Tumors

  Surufatinib was recently granted Orphan Drug designation by the FDA. This drug was made for the treatment of pancreatic neuroendocrine tumors (PanNETs). It was created by Hutchison China MediTech…

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Phase 1 Trial of Experimental Treatment for Neuroendocrine Tumors Begins
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Phase 1 Trial of Experimental Treatment for Neuroendocrine Tumors Begins

According to a story from Central Charts, the drug developer Crinetics Pharmaceuticals, Inc. recently issued an announcement revealing that the company has begun the initialization of a Phase 1 clinical…

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Study Reveals Combination Therapy for Aggressive, Cancerous Neuroendocrine Tumors
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Study Reveals Combination Therapy for Aggressive, Cancerous Neuroendocrine Tumors

According to a story from EurekAlert!, a recent research study has found that a two part immunotherapy combination treatment has the potential to be a useful treatment for high-grade neuroendocrine…

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Press Release: ASCO Names Advance of the Year: Progress in Treating Rare Cancers

Progress Report Debuts ASCO’s Research Priorities for the Cancer Community, Emphasizes Impact of Federal Funding FOR IMMEDIATE RELEASE January 31, 2019 Ashley Yum 571-483-1376 [email protected]   ALEXANDRIA, Va. — Over the…

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