August 5, 2015 – Patient Worthy

How to Get the Word Out on Rare Diseases While Naked

Post author:Patient Worthy Contributor
Post published:August 5, 2015
Post category:Cystinosis Rare Disease

The Cystinosis Research Network (CRN), a charity organization based out of Chicago, just finished hosting their summer travel conference, "Dream, Achieve, Inspire" International Artwork Showcase. Over 100 artists were featured, from…

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You’ll Want To Know What This Scientist Found Out About HAE

Post author:Patient Worthy Contributor
Post published:August 5, 2015
Post category:HAE Rare Disease

Hereditary angioedema, or HAE, is a life-threatening rare genetic disease with a lot of still-unanswered questions. However, scientists at the Karolinska Institute in Sweden, Science Daily reports, may have answered…

If Music is the Window to the Soul, This is Stained Glass

Post author:Patient Worthy Contributor
Post published:August 5, 2015
Post category:CVID Rare Disease

Do you know who Maree McRae is? If you don't, read her in-depth interview featured on HollywoodtheWriteWay.com. Or, for all you lazies, here are the bullet points: McRae is a singer/songwriter who…

How to Get the Word Out on Rare Diseases While Naked

You’ll Want To Know What This Scientist Found Out About HAE

If Music is the Window to the Soul, This is Stained Glass

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