Did you know September is Dystonia Awareness month!
It’s in the process of becoming nationally recognized, all it needs is your signature! Sign the petition, visit Dystoniaaware.org, or watch their video (below) to learn more!
In honor of Dystonia Awareness month, Patient Worthy will be publishing a number of articles by Pam Sloate aka Dystonia muse. She is an avid blogger and advocate living with Dystonia. You may have already read two Patient Worthy articles about her, “She Spoke Into Her Answering Machine, What Played Shook Her” and “This Woman Lost Her Father, See Why The World Mourns” but now you’ll get a chance to read some pieces just as she authored them. Take a look at her bio below!
Pamela Sloate has lived with generalized dystonia for over 40 years. She devotes herself to health activism to raise awareness of her rare disorder, moderates a patient support group at Mount Sinai Beth Israel in New York City, advocates for the dystonia community, and advances fundraising. Pamela holds degrees from Brown University and NYU School of Law, and her career spans law, marketing and non-profit administration. Her blog, Chronicles Of A Dystonia Muse, found at www.dystoniamuse.com, recounts the twists and turns of life with dystonia. To commemorate her parents’ pioneering contributions to the cause of dystonia awareness and the advancement of medical research, Pamela has established a fund in their honor in collaboration with the Dystonia Medical Research Foundation. Donations can be made to The Martin & Roberta Sloate Dystonia Research Fund at the following link: www.dystonia-foundation.
We hope to bring more awareness to this condition and will be posting other articles featuring amazing individuals who are living with Dystonia, keep an eye out!
Be sure to share this to your social friends to help us and Pam get Dystonia Awareness month on the map!
