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Daily Archives: December 23, 2015

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This is What Happens When a Bunch of People Randomly Jump in Public
People jumping outside

This is What Happens When a Bunch of People Randomly Jump in Public

  • Post author:Winnie Nash
  • Post published:December 23, 2015
  • Post category:Dystonia/Rare Disease

Beginning last year, Dystonia Europe launched a campaign that called people to do one thing: JUMP! Participants were challenged to JUMP for Dystonia, and throughout the past several months, all…

Continue Reading This is What Happens When a Bunch of People Randomly Jump in Public
But, Heart Attacks Are For Old People!? Not So Fast

But, Heart Attacks Are For Old People!? Not So Fast

  • Post author:Winnie Nash
  • Post published:December 23, 2015
  • Post category:Familial Hypercholesterolemia/Rare Disease

It’s not often that the “old” people are worried about the “young” people having heart attacks. But, unfortunately, that’s the reality for the Watts family. Their seven-year-old daughter, Avery, has…

Continue Reading But, Heart Attacks Are For Old People!? Not So Fast
This Dad Will Stop at Nothing for His Cystic Fibrosis Son

This Dad Will Stop at Nothing for His Cystic Fibrosis Son

  • Post author:Patient Worthy Contributor
  • Post published:December 23, 2015
  • Post category:Cystic Fibrosis/Rare Disease

I have no experience living with cystic fibrosis or understand what it feels like to go through the daily regimen. I do know what it’s like to give care to…

Continue Reading This Dad Will Stop at Nothing for His Cystic Fibrosis Son

Meet Matt: Inspiring People to Dream Big, On and Off the Gridiron

  • Post author:Ronald Ledsen
  • Post published:December 23, 2015
  • Post category:Cystic Fibrosis/Rare Disease

For many cystic fibrosis (CF) patients who grew up in years past, one of the greatest hurdles and frustrations was being told they couldn’t do something, especially sports or physical activities. Sometimes…

Continue Reading Meet Matt: Inspiring People to Dream Big, On and Off the Gridiron
Have Dystonia? This Doc Has Mad DBS Skills

Have Dystonia? This Doc Has Mad DBS Skills

  • Post author:Erica Zahn
  • Post published:December 23, 2015
  • Post category:Dystonia/Rare Disease

Dystonia causes involuntary muscle contractions and can result in abnormal posture. There are a number of different types of dystonia, and there is no known cure. Parkinson's disease (PD) is…

Continue Reading Have Dystonia? This Doc Has Mad DBS Skills
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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